love

I know I'm atypical when it comes to pain. I experience pain in all my muscles, even in my jaw and even in muscles still working well and with good strength. Yesterday, the outdoor pool was 85 degrees. I walked down with my noodle (it's not a far walk.) I had no trouble getting in and out of...

April 21st will be two years since i lost my mother to this disease. Mom i still think about you all the time and still the pain hasn't gone away... All the time i lay here wishing you were still here. I used to fantasize about how our lives would have been different if you never developed...

Hello PALS I have been doing some research into NurOwn as a therapy for ALS. The problem I have is that I'm not a scientist, and the published reports leave me a little confused as to what is actually going on. I was hoping that a few people on this forum may have undergone the trials to date...

I started having problems and about May of 2015 I am now on the date of February 26th 2017. My hands and feet are paralyzed have no equilibrium. I need help with everything except I can get in the bath and climb out on my side period I have to use two hands brush my teeth and it takes forever to...

It is with a broken heart that I say that my PALS, Ted Cody, passed peacefully this morning. His family was in the house but in the end it was just me and him. He opened his eyes, made eye contact with me and slowly drifted away. I will love him forever.

Spent all day yesterday looking at houses in the Melbourne FL area. I have been approved for the SAH grant so one primary focus was the Master Bedroon and Bathroom areas. Out of the 10 houses we looked at, there were really only 2 that had possibilities to be modified to meet the SAH...

I am looking in to buying a bidet for my PALS. Does anyone have one that they love? Also, any that I should stay away from?

Hello, I came across this episode of a podcast that I sometimes listen to, in this episode they interview a young ALS patient: https://gimletmedia.com/episode/88-second-language/ The story starts around 16 minutes in. I would love to hear your impressions about it.

Good day everyone, I have joined the ALS society because well it is a cause that is near and dear to my heart. In grade 8 I wrote a paper on woman who asked for the right to die with dignity as this extremely painful degenerative disease took her life. Her story impacted me on so many levels...

Hello, In December of 2016, I got engaged to the love of my life. Just prior to that (around August or September of 2016), he reported that he had a "funny feeling" in his left ring finger, then slowly started having difficulty moving it. In December, he had a nerve conduction study done, and...