lonely

  1. B

    Don't mean to hijack...

    Hi wonderful CALS. I know I don't belong here as a PALS but I just have to get your opinions as they are the only ones that count on this subject. My wife and I have been married 31 years. We had a rough patch for a couple of years around our 15th anniversary but it was all worked out. No...
  2. J

    Moodiness

    Jay has been so moody lately. I get it, he's struggling and I'm the closest one to him so he's taking it out on me. But lately it's really bothering me and I'm not sure how to handle it. He doesn't really talk to me at all but to tell me to itch him, re position him, take him to the bathroom...
  3. Barbie

    Spreading His Ashes <3

    Over Memorial Day weekend my kids and I all flew up to Maine to spread Lonny's Ashes. He was raised in a small town on the coast and considered that his home so I decided that would be a good place for him. I rented a house in the town he lived in and we had a lovely time walking around and...
  4. E

    Friend Tia has passed

    Hello all my friends, this morning I received a text that our dear friend Tia, is now in a much better place. My wife knew she was in bad shape because her brother informed us that she just received her last rights. We thought we had the time to make it to their home to say goodbye to her, but...
  5. Jeanau

    Audrey J McLaughlin Passes

    Dear Forum Members, I am Tom McLaughlin, husband of Audrey McLaughlin. I never posted as I was always afraid to discuss her disease, except with her. Sad I know, but that's my way.I am sorry to tell every one Audrey lost her brave battle ALS, due to breathing failure. She actually passed...
  6. K

    reality bites

    It is time for me to move from do I have als/mnd to another forum however I do not have a specific diagnosis as of yet, to explain which I am confident most or all of you will understand my 4 emg's and clinical exam cannot be denied. I went in November 18 th for a fourth emg it is always an...
  7. K

    ... what helps?

    Hi folks, I've read some of your posts, but this is my first time posting. I'm currently caring for my mom, who has ALS. Feeling a bit lonely and isolated, so I'm reaching out online... About mom: She was diagnosed just over two years ago. She just turned 64 last week. She has limb-onset...
  8. B

    Scared lonely and dreading my apt

    I have pictures I want to show so you may see but I don't know how to post them? I am convinced I have ALS. Before you tell me I don't belong here or I am exaggerating, please take the time to actually read my post. I am 24 turning 25, female thin build and 5'7 & half. I'm not athletic. Over...
  9. affected

    eva so lonely without u

    Having a real 'missing Chris' time lately. For some reason I went onto you tube and was listening to some music from an artist I have enjoyed since the 90's. I played a fair bit of her music while Chris was actively dying - it went so well with candles at night to keep a beautiful feeling...
  10. tripete

    Mom I Want A Pet Gospel

    Mom I Want A Pet Gospel This is a Halloween story about Billy, and how his Mommy took him to buy a pet gospel. Once upon a time, there was a little boy named Billy. He was a good little boy. He loved playing with his toys. He enjoyed making believe. He usually did what his Mommy and...
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