locked in

Hi all, Well, mom's right arm (which is all she has left, other than holding her neck up) is dying fast, which leaves us scratching our heads about whats next as far as communication goes. We ordered the fancy DynaVox several months ago, and I has come in-FInally! BUT- now that she is in...

My dad was a top notch guy. A State Trooper for 33 years, a member of the ski patrol at various ski areas in NY State for 20+ years. He was a wonderful craftsman and a real do it yourselfer. He loved tinkering, fast cars and his Harley. Most of all he loved his family. He retired from the...

I am mulling over so many ways to plan for my future. I know its a very hard subject to discuss, but it needs to be done. Quality of life and the Quality of Wanda's life are paramount. I would like to entertain the idea of having a Vent installed if I am still able to communicate, whether...

as a caregiver to my husband who was diagnosed in Sept. 2008 bulbar onset it is very hard. He is what yall call locked in he can move his left arm and leg a little bit but thats pretty much it, his speech is getting worse. He told me the other day he didn't know why god just didn't take him he...

families and survivors Site Search Military members at greater risk of developing ALS Posted: 15 minutes ago Durham, N.C. — Three years ago, Dugan Smith was the picture-perfect Fort Bragg soldier – strong, fit and muscular. "I was in the best shape of my life," said Smith, who was in his...

Just a note to jog everyones memory, be careful when transferring into or out of a wheel chair. While transferring from my car to the wheelchair I can usually have my wife lock my legs in straight position and pivot around into the wheel chair. It has worked that way for over a year without any...

I am so glad to have found this site. I have been reading through the posts for 2 days now...you have all left me so inspired and enlighted at your strength and courage. After 2 years of symptomology which started with imbalance my father was finally diagnoseded with ALS. For all this time...

Hi Al-we know you are still recouperating from your big time yesterday but inquiring minds want to know: how did it go? Any funny stories to tell? (You didn't get locked in a bathroom again, let's hope not!) Regards, Cindy

Mom, is finally coming quickly to the end of her journey with this terrible desease called ALS. It has been such a trying time for the whole family and mom. Seeing my mother locked in her own body and unable to move has been a nightmare for mom and all of us. But she has been vigilant and...

Hello everyone. I am very frightened at the possibility of an ALS dianosis. It started with facial muscle weakness that at first I thought was TMJ. Then it was in my legs. I have trouble walking, and muscle atrophy in my left calf. The muscle is all but gone and I lost 10 pounds in one week...