locked in

Listen up: new tool to help people who are locked in - health - 09 November 2013 - New Scientist

For some random reason, and maybe not so random, I decided to see if there were any ALS forums and came across this one. Really what led me here was the fact that I wish I could help my Grandfather and Grandmother with the world when it comes to ALS, and I was going to ask if anyone knew of a...

I'm not sure if this is the right place to post but I feel compelled to try. I'm looking to visit people with Locked In Syndrome in the New York area. I am a female who has always been sensitive to feelings, energy and vibrations of people and animals. Increasingly more so now than ever...

Hi, my brother (see earlier posts) is completely paralyzed now except for his face. He has a straw for a call light and can't press anything with any part of his body. He has lost the ability to speak. He has a Dynavox which we have been most grateful for, but we are having real difficulties...

Hi, my brother (see earlier posts) is completely paralyzed now except for his face. He has a straw for a call light and can't press anything with any part of his body. He has lost the ability to speak. He has a Dynavox which we have been most grateful for, but we are having real difficulties...

Hi, my brother (see earlier posts) is completely paralyzed except for his face. He has a straw for a call light and can't press anything with any part of his body. He has lost the ability to speak. He has a Dynavox which we have been most grateful for, but we are having real difficulties...

It's not quite here today, but in the works. This gives hope for those who are afraid of being "Locked In". Scientists Invent Mind-Reading System That Lets You Type With Your Brain -Tom

Today we signed up for hospice through our VNA. I know this doesn't mean I have six months left but it's hard to grasp I am eligible. My body mass is low and my breathing weak. I eat a little but I get what I need through my peg. I use a bipap at night. My legs are much weaker and right...

Hi all, It has been a little over a week since my diagnosis and this is my first post. my symptoms seem to progress on a daily basis. I have been essentially bed bound in my condo with a livein caretaker for a few months. I have a 90 year old, healthy mom nearby and a son, daughter in law and...

I searched but couldn't really find anything on this. Diagnosed Aug and Nov 2011, All lower motor, no signs of upper. I heard PMA is slow progression - don't believe it as I can only manage few steps with walker -usually transfering. Feet swell horribly, sometimes turn red and purple...but...