lithium

  1. M

    I am 25 with familial ALS- "Sayin Hi"

    Ok here is my story, 11/12/2008 I was diagnosed with ALS. I am 25 years old as of two weeks ago. My father died when I was 6 at the age of 35. He was diagnosed and gone within 6 months. I vividly remember what this disease did to him and I am in no way looking forward to it. 7 years later in...
  2. J

    very fast progression

    So just over a month ago I posted about my Dad being diagnosed with ALS. He has since seen an ALS specialist (two actually) and it has been confirmed unfortunately. It is not west nile virus or lymes disease as we hoped. I went to visit my family for 3 weeks in November, and when I got there...
  3. R

    Question on hallucinating

    Please correct me if I’m wrong but from what I’ve researched ALS does not have any effect on the mind. I ask because my Dad has been hallucinating for the past 4 or 5 days. He says he is seeing things floating around, pictures moving etc. He tells me that he is moved from his room during the...
  4. C

    Change in Rate of Progression

    Hi Everybody I haven't posted in some time, but have really appreciated the helpful posts and support posted by others. I have a question regarding rate of progression. I know that everybody is different, but was looking for some direction from those whose progression started slow and then...
  5. J

    I am freakign out.

    The twitches have moved lower, to my feet but they are still in my legs. My legs have been weaker and my FEET have been bothering me, my ankles hurt and feel weak when I walk and the fasciculations are in my feet and are almost constant. The insides of my feet (the arch?) are the most "twitchy"...
  6. S

    Lithium and Riluzole?

    Anyone tracking those who might be taking Lithium and Riluzole to see what sort of benefit this combination might provide? Anyone here trying it (both), and if so, to what effect? Searcher
  7. S

    Trying many different treatments

    I was diagnosed around 1 year ago. I decided to try everything I can think of. Here is the list of what I have tried so far. 2 IVIG treatments, IV ceftriaxone, Lithium Carbonate,prednisone,lyrica. Now I am going to International Stem Cell Institute for my stem cell treatment. They will infuse...
  8. S

    stem cell and ...

    Hi All: my brother emailed me about this guy doing stem cell surgeries with reported success, although i cdn't find anything re: als. does anyone know more ? Dr. Carlos Lima Egas Moriz Hospital Lisbon, Portgual tel. 351.21.365001 also, when you do a google search: "als stem cell" there's all...
  9. ZenArcher

    Dire Diagnosis

    As published in the Henderson, KY paper The Gleaner: Brenda Pitt was in the middle of living her extremely busy life when she received a diagnosis that -- briefly -- stopped her in her tracks. "I have what?" she asked the specialists at Indiana University Medical Center on June 3, not sure she...
  10. Al

    ALSA Supports Lithium Trial

    For those that don't get the ALSA Research Updates The ALS Association to Support Trial of Lithium by Richard Robinson The ALS Association is funding a major clinical trial to determine if lithium can slow disease progression in patients in the early stages of ALS. The study builds on...
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