Ok here is my story,
11/12/2008 I was diagnosed with ALS. I am 25 years old as of two weeks ago. My father died when I was 6 at the age of 35. He was diagnosed and gone within 6 months. I vividly remember what this disease did to him and I am in no way looking forward to it. 7 years later in...
So just over a month ago I posted about my Dad being diagnosed with ALS. He has since seen an ALS specialist (two actually) and it has been confirmed unfortunately. It is not west nile virus or lymes disease as we hoped.
I went to visit my family for 3 weeks in November, and when I got there...
Please correct me if I’m wrong but from what I’ve researched ALS does not have any effect on the mind. I ask because my Dad has been hallucinating for the past 4 or 5 days. He says he is seeing things floating around, pictures moving etc. He tells me that he is moved from his room during the...
Hi Everybody
I haven't posted in some time, but have really appreciated the helpful posts and support posted by others. I have a question regarding rate of progression. I know that everybody is different, but was looking for some direction from those whose progression started slow and then...
The twitches have moved lower, to my feet but they are still in my legs. My legs have been weaker and my FEET have been bothering me, my ankles hurt and feel weak when I walk and the fasciculations are in my feet and are almost constant. The insides of my feet (the arch?) are the most "twitchy"...
Anyone tracking those who might be taking Lithium and Riluzole to see what sort of benefit this combination might provide? Anyone here trying it (both), and if so, to what effect?
Searcher
I was diagnosed around 1 year ago. I decided to try everything I can think of. Here is the list of what I have tried so far. 2 IVIG treatments, IV ceftriaxone, Lithium Carbonate,prednisone,lyrica. Now I am going to International Stem Cell Institute for my stem cell treatment. They will infuse...
Hi All:
my brother emailed me about this guy doing stem cell surgeries with reported success, although i cdn't find anything re: als. does anyone know more ?
Dr. Carlos Lima
Egas Moriz Hospital
Lisbon, Portgual
tel. 351.21.365001
also, when you do a google search: "als stem cell" there's all...
As published in the Henderson, KY paper The Gleaner:
Brenda Pitt was in the middle of living her extremely busy life when she received a diagnosis that -- briefly -- stopped her in her tracks.
"I have what?" she asked the specialists at Indiana University Medical Center on June 3, not sure she...
For those that don't get the ALSA Research Updates
The ALS Association to Support Trial of Lithium
by Richard Robinson
The ALS Association is funding a major clinical trial to determine if lithium can slow disease progression in patients in the early stages of ALS. The study builds on...
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