lithium

  1. S

    Brother's Regimen Update

    I pray many of those fighting the good fight are still here since I originally posted. Just an update on my brother. I originally posted my "Brother's Regimen" about 2 years ago. Wow how time fly's....anyway, he is not walking as well as he did in '09 but he still gets around on his own. And...
  2. A

    Interesting trial /news that you may find usefull

    Ok, so I will try to be as clear as possible, since English is not my first language. Im from Chile and believe it or not we have quite some advancements in terms of trials and medical proceadures. My dad was diagnosed in august last year with ALS and as probably has been for all of you its a...
  3. Raul_Chicago

    New and a little scared. Can u help?

    Hi there, My father who is 69 is in the process of being diagnosed with ALS. I say this because he has seen a Neurologist who says that his symptoms - Muscle atrophy, fasiculations, weakness, tremendous weight loss along with dropfoot and a few others, combined with positive looking nerve...
  4. M

    Has anyone tried these trial drugs?

    I am thinking about going on these trial drugs and wondering have any of you tried these drugs. Do not know if my doctor will give to me and is thinking about it. If not could any one advice me on a good company to buy over internet. What research is being done? The NINDS supports a broad...
  5. B

    Lithium users - not what you think!

    For those of you that have gone off Li, have you found your symptoms increased? My husband, DaddyO, wants to go back on Li after he slowly came off of it. His cramps, while on Li, were less severe and less frequent. Now they have really ramped up, since stopping the drug. Also, his gagging...
  6. M

    Do Rilutek side effects disappear?

    Rilutek was prescribed for a friend in the UK who is newly (2 months) diagnosed with ALS. He took it for a few days, but felt so "weird", rather dizzy and nauseous, that he stopped taking it. His doctor insisted that he start again, which he has done, but he complains of the same side effects...
  7. C

    Two major questions

    I have two major questions. A friend of mine keeps sending me all this stuff on "cures" for ALS. She just sent me one that says if I take Lithium something or other it will slow the progression of my ALS. This study was done in Italy. Have you heard anything about it? The other question is...
  8. N

    What to do with meds?

    Unfortunately, my husband can no longer use the Rilutek, Lithium and Glycopyrrolate pills that were prescribed for him. We live in the Seattle area and hate like all get out to just throw these in the garbage. Any ideas? Leave message at (425) 248-7185 and I'll also check back for posts to...
  9. Blubear

    Have you tried something that has slowed your progression?

    [I]My dad was diagnosed with ALS 9/09. As a family, and in the denial stage we have been all over the internet looking for a cure or even hope. What I have found is the common link among long lifers is a possitive attitude. Lithium seems to work for some, and not for others. The same for...
  10. L

    For Sale - Dynavox Vmax Device with InterAACT Technology

    I am selling a Dynavox Vmax Device that was only used a few months before our patient succumbed to pneumonia. Everything is in full working order. We want to sell the whole bundle listed below for only $2,500 to offset our expenses. The bundle includes: • Dynavox Vmax with 256 MB Ram, 60...
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