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  1. P

    Waiting and worrying

    I'll try to keep this as succinct as possible. I have been experiencing a variety of symptoms for several months. Symptoms have included; shortness of breath, fatigue, tripping/falling and most recently atrophy and weakness in my left leg. I have been evaluated by a pulmonologist...
  2. F

    Would really appreciate some advice

    Firstly, I'm keenly aware what some of you are going thorough, and I'm in awe that you all still give advice and aid to others. A truly good sign of humans overall. Thank you. And I wish nothing but goodness to you all. I'm terrified I have ALS. My main symptoms are arm/leg weakness, some...
  3. T

    What do these symptoms sound like?

    Hello all, I am sorry to bother you with this, and I promise I did read the sticky. However, I am frightened as hell, and could use some guidance. I am a 29-year-old Caucasian male with no family history of neurological diseases. At some point in December 2018, I started to notice...
  4. Jamesgol

    Wheelchair & van advice?

    I have now reached the stage where a wheel chair and van combination are needed. My neurologist just wrote the prescription for a wheel chair yesterday. The ALS Society is going to loan me a Permobil F3 until I can get one of my own. Which type of wheel chair (and options) do you prefer? What...
  5. swalker

    Skiing at Vail

    Last Wednesday I went out for my first ski day of the season. For those new to my ski adventures, I ski with Vail's adaptive ski program, about which I just cannot say enough good things. I use a biski, which is a contraption with two articulating skis, a suspension system, and a seat for me...
  6. P

    neck pain

    My husband, Frank, has had increasing neck flexion (chin resting on chest) and tilt to the right. His head is now so far forward that the wheelchair headrest supplies no support. He has a neck brace but even this no longer helps. I am applying heat and he is taking extra strength Tylenol with...
  7. T

    Where to Go From Here

    Hello. My husband was diagnosed ALS May 24, 2018 at age 43. It all began in April 2017 when he began having difficulty clipping his nails, left hand onset first. From there it was over a year of testing, specialist, etc, which is the only normal thing I guess about this disease; difficult to...
  8. M

    Neurologist follow up

    Going in on Friday for a follow up with my neurologist because I have finished physical therapy with no improvement. I was previously diagnosed with cramp fasiculation syndrome but it doesn’t appear to be the case because I have weakness and atrophy noted by my physical therapist... which at the...
  9. M

    Could you help me out with my symptoms?

    I’m so sorry to be posting here, I just feel so nervous and can’t get into the neuro for a few months. Thank you for taking time to read this. I have had muscle weak in my right arm since November to the point it’s hard to lift my arm to brush my hair. I now have it in my left arm as well, also...
  10. K

    Also...Slow or Fast Progression?

    Karen, I must admit I am wondering the same thing...slow, fast, average? I know today is a gift, we should live each day and day by day, but my wondering has to do with decisions that need to be made. My PALS was diagnosed in January 2018 with symptoms becoming very noticeable in August 2017...
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