Hello All -
This is my first post. I have not received an ALS diagnosis, but due to my Gulf War Service/Syndrome I am deathly afraid of this disease. I feel like I have been showing very early symptoms for a few years now. Many of them may attributed to my Gulf War Syndrome, many point away...
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Hello everyone.
I was diagnosed on June 4th, though I have "known" for about a year. I have been having difficulty speaking clearly and chewing for about that long as well. If my symptoms started around a year before diagnosis, and then about a month after diagnosis I began experiencing...
Good morning,
I do not currently have ALS or any other neurologic diagnosis, though nearly everything else has been ruled out. I am, however a neurologic physical therapist and have a pretty good idea what my symptoms may indicate. I am not here to discuss the "do I, don't I.". I just want to...
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Before being diagnosed I had been playing "catch up" with me retirement planning and had been putting every extra dollar into a 401K. I know that my wife will receive the money when I die as she is my beneficiary, but I am wondering that if going forward, should I be putting the money into some...
Hello. My wife just died two weeks ago after fighting ALS for 6 years. We signed up for life insurance about 9 months after her diagnosis. We disclosed she had ALS at the time; in fact, she was already in a wheelchair at that point. They told us that as long as it wasn't cancer or heart disease...
Hello I have been a lurker on here for a little bit and figured I would post and see your thoughts. I really appreciate your time reading this.
For the last 2 years or so I have noticed some weakness in my legs. Weakness being more of a feeling not clinical weakness. I can still do everything...
Max clued me in on this and it will put $250,000 in my bank, minus a discount fee.
It is something we should all be aware of.
The life insurance Max and I have is a benefit from Hewlett-Packard is managed by Aetna. There is an option in it called Accelerated Death Benefit, which can be...
Hi, I've been unwell for a few years and no one has been able to put a handle on it so to speak.
I have been aware of MND for ages as it's been getting a lot of press and the diversity of people getting it seems to be expanding.
I get VERY tired all the time for no reason, after being up for...
Frequently asked questions about Familial ALS (FALS)
My relative had ALS. Am I at risk?
If it was one relative the answer is generally "no". The exception to this is if you also have, in the same bloodline, a relative with unusual dementia, especially younger onset and especially frontal...
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gotta love this one -
phone rings just now ... me:hello, Katrina speaking. caller: hi is that Chris?
Me: no it's Katrina. caller: can I speak to Chris please?
me: who is calling? caller: xxx from ANZ.
me: no he isn't here what is it about? caller: oh I'll call him back on his phone.
me: no...