life insurance

  1. BlsdMama

    Accelerated death benefit / life insurance

    I have two policies and both have accelerated death benefit, meaning that I can collect half the policies before I die when I am deemed to have 12 months or less. I've been a very slow progressor, initially diagnosed with PLS, then SPS, then PLS again, and finally 1.5-2 years ago cementing the...
  2. T

    Worried about the future

    Hi, yes I was doing better. Now, I’m so worried about the financial security of our family. Before this, we had a plan for retirement, college, etc. My husband earns almost twice what I make. How are we going to survive when he can’t work? And, how will we make it once he is gone? He has life...
  3. B

    Questions regarding life insurance

    Good morning. 32 years old with two young children and pregnant with my third. Undergoing testing for a neurological issue, with ALS as one clinical possibility although I have no been formally or even informally diagnosed yet. I have life insurance through my employer but no private policy. I...
  4. S

    I'm Hoping to help veterans with ALS

    My dad recently passed after a 2 year battle with ALS. I was his only relative, so by default became a caretaker. I spent hundreds of hours on VA benefits and my Dad's wish was for me to help others. I found PVA and DAV in my area to be of very limited help. They basically got me started and...
  5. chally

    I’ve insurence

    Well I am intrigued with a members choice in reaching the finish line by untilizing VSED . Along with hospice help. Does anyone know what insurence companies think about this. Seems like a good way to head out but not at the loss of life insurance. Any thoughts? Chally
  6. R

    Life insurance

    I'm trying to get some term life insurance, but I keep getting turned down because I have PLS. I was diagnosed back in 2007, and my progression has been slow. I'm in excellent health aside from being in a wheelchair. I had insurance with my previous job, but lost that when they closed up shop...
  7. BlsdMama

    FTD and ALS and insurance?

    So no one ever asked me if I had any family members with dementia. ALS, yes, but dementia no. ALS Clinic was yesterday. I had run across an article about frontotemporal dementia and ALS. I asked if there was a link. The neuro was concerned. My grandmother died from FTD a few years ago...
  8. I

    Mortgage Insurance Question

    Hi. My husband was just diagnosed in January. We are still trying to figure out all the benefits available to us and how to navigate through everything. We have applied for the adaptive housing grant and we are in the process of being approved for that. We were told that once we're approved...
  9. Bestfriends14

    Unofficial diagnosis

    Well, we wrapped up the EMG testing today. The tests, based on the results, point to ALS. There is chronic, acute nerve damage in his left leg and it has spread from his left leg to his right leg. Still no damage to his upper body, though (is this normal?). Both UMD and LMN show disease. I...
  10. E

    Genetic Testing - Advice, please

    Hi everyone. I am new to these forums but unfortunately not to ALS. My father was diagnosed at the end of 2004 and passed away March of 2006. My grandfather was diagnosed in 2012 and passed away early 2013 (he had many other health issues, as well.) My grandfather's brother had Muscular...