lead

  1. H

    The End

    Hello, I have stumbled upon this forum search for answers that I don't know if you'll be able to help me with or not. I have a very close loved one who was diagnosed with ALS five months ago. We were told that the onset is bulbar and to expect a good year. My loved one is in herod seventies and...
  2. Blubear

    Something good can always come from the ashes

    Hello dear forum friends! So so sorry I haven't been on here for a very long time. It brings up a lot of pain from the past year and I am not as strong as I thought I was, so I am taking a breather. I am okay. Michelle is still very very sick. Still lead poisoning and the usual, but now she...
  3. B

    How do you tell?

    On the one hand he is normal and "spot on." On the other hand he, for example, insists I need to give him his medicine. That would be the medicine I just gave him 30 minutes ago and I can't seem to convince him I gave it to him. I get him nicely tucked into bed with his BiPap and audio book...
  4. ruthiep

    Graduation & pallet party with grandbabies!

    Thought I share some happy news for our family....our youngest daughter graduated today with her respiratory therapy degree! It’s amazing how the good Lord works! Approx. 2 years ago she decided she was tired of her major at Troy and wanted something different.....Scott and I were perplexed by...
    • ruthiep
    • Thread
    • als back diagnosed family lead night respiratory sleep therapy wanted
    • Replies: 6
    • Forum: Stories of hope
  5. A

    Phase 2 trial yeilds encouraging results

    This just came in from the MDA - ALS Division: As it is encouraging for those diagnosed in the future - I am praying that the success of these trials speeds up. Trial participants receiving the highest dose of CK-2017357 showed symptom improvement in the first stage of an ongoing phase 2 trial...
    • apollick
    • Thread
    • age als breathing candida chair clinical clinical trial diagnosed drug trials drugs fatigue fda financial food functional rating scale improvement increase information lead medical mnd muscle neurology professor progression rilutek riluzole sensitivity symptom test testing tests therapy treatment trial work
    • Replies: 15
    • Forum: Research and trials
  6. TedH5

    CBS NY story on the Emory Stem cell trial

    Stem Cell Research Could Lead To ALS Cure « CBS New York
    • TedH5
    • Thread
    • als als cure cell cure lead research stem cell stem cell research story trial video
    • Replies: 19
    • Forum: Research and trials
  7. Jason's Dream

    I hate this disease!

    Just another rant... Today I was reminded again how this disease alienates us from other people in our lives... from doing the ordinary, mundane, and fun things in life... a simple post on a social network listed every girl friend I know and how they had a night out and what fun they had...
  8. L

    Hospice update

    I spoke with my stepdad about hospice. He seemed like he wants to do it; but he's afraid doing it will kill the little spirit my mom has left. He's trying so hard to abide by her wishes, but I told him, she's never going to AGREE to get hospice. She also has cognitive impairment, most likely...
  9. Alyoop

    May be a small step forward?

    I gripe and groan about the laws in countries like NZ, Australia and UK, regarding the absence of choice, when it comes to venting a person with Motor Neurone Disease. I really want to try and change it. Not that I have any idea how? I just Sat down with my neurologist husband and talked about...
    • Alyoop
    • Thread
    • family hope lead life love mnd neurologist quality of life venting voice
    • Replies: 10
    • Forum: Stories of hope
  10. S

    Research news about the cause of ALS

    New important discovery: Found protein (ubiquilin2) is cause of all ALS Major breakthrough as researchers discover common cause of all forms of amyotrophic lateral sclerosis
    • SomeUser44
    • Thread
    • ability als brain breakdown children clinical drugs dying familial familial als lead lou gehrig's disease medicine memorial muscle neurologist neurology onset paralyzed planning problem problems professor research sod1 sporadic stroke swallow symptoms test therapy treatment worldwide
    • Replies: 63
    • Forum: Research and trials
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