kids

  1. skipper66

    Regret!

    My father passed away from ALS on November 21st of this year 2015. I have a regret. I wish I had took more pictures of him after his diagnosis with me and also with my kids. When he first found out he had ALS I felt I shouldn't upset him by flashing a camera in his face because I didn't want...
  2. A

    Bulbar concerns

    Hello. I have been reading on this site for weeks. I have been very anxious about my symptoms, but just today experienced something that has me very panicked. I am hoping someone can read this and let me know what they think. Brief background - starting twitching late October 15. EMG done...
  3. swalker

    Things I have learned about a wheelchair

    I have been using a wheelchair for 9 months and think I have learned enough to make it worthwhile sharing a few things. For background, I now have 3 wheelchairs. Primary chair is a Permobil C500s VS (I have over 650 miles on it now) Backup chair is a Permobil C500 Corpus 3G (I have only put...
  4. S

    Not sure what to think

    **Sorry for the length, I didn't realize how long it got until I hit preview.** I have read thru the sticky's and know that what I am experiencing is likely something different, and I really hope I am in the wrong place. I have been reading posts for the last week and finally got up the courage...
  5. D

    FTD or just difficulty processing directions/information

    My husband was diagnosed with bulbar onset ALS in August (so we've lived with it for 5 months or so now) and his symptoms have progressed. But what has surprised me the most--and has been the most difficult thing to come to terms with or manage--has been the change in how he processes...
  6. A

    Is early onset indicative of Fals?

    Something has been playing on my mind. My neurologist said there was a 40% chance of my ALS being genetic as it is so rare to get ALS at 34. I am certain my dad's side of the family does not carry the gene. He is one of 7 kids, I have 30 cousins. No one has ALS. My mum's family is small. She...
  7. sleepy

    first post - I hope you tell me I'm in the wrong place

    I have read the stickys.. I have read a lot of threads. It's wonderful that you support each other and answer new people's questions. I hope you do not feel I am wasting your time. I am female, 39 next month. I started slurring my speech 3 months ago. It does vary through the day, and is...
  8. Junyeong

    Renaissance Man Dealing With ALS

    Since registering here in 2012 I haven't posted anything. My Grandfather was a Renaissance Man and an organized collector. I got the extreme end of both. Some would call it hoarding, but I prefer to think of myself as a professional repurposer. :) My dad was never a very emotional person, so...
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