kids

My father passed away from ALS on November 21st of this year 2015. I have a regret. I wish I had took more pictures of him after his diagnosis with me and also with my kids. When he first found out he had ALS I felt I shouldn't upset him by flashing a camera in his face because I didn't want...

Hello. I have been reading on this site for weeks. I have been very anxious about my symptoms, but just today experienced something that has me very panicked. I am hoping someone can read this and let me know what they think. Brief background - starting twitching late October 15. EMG done...

I have been using a wheelchair for 9 months and think I have learned enough to make it worthwhile sharing a few things. For background, I now have 3 wheelchairs. Primary chair is a Permobil C500s VS (I have over 650 miles on it now) Backup chair is a Permobil C500 Corpus 3G (I have only put...

**Sorry for the length, I didn't realize how long it got until I hit preview.** I have read thru the sticky's and know that what I am experiencing is likely something different, and I really hope I am in the wrong place. I have been reading posts for the last week and finally got up the courage...

My husband was diagnosed with bulbar onset ALS in August (so we've lived with it for 5 months or so now) and his symptoms have progressed. But what has surprised me the most--and has been the most difficult thing to come to terms with or manage--has been the change in how he processes...

Something has been playing on my mind. My neurologist said there was a 40% chance of my ALS being genetic as it is so rare to get ALS at 34. I am certain my dad's side of the family does not carry the gene. He is one of 7 kids, I have 30 cousins. No one has ALS. My mum's family is small. She...

I have read the stickys.. I have read a lot of threads. It's wonderful that you support each other and answer new people's questions. I hope you do not feel I am wasting your time. I am female, 39 next month. I started slurring my speech 3 months ago. It does vary through the day, and is...

Since registering here in 2012 I haven't posted anything. My Grandfather was a Renaissance Man and an organized collector. I got the extreme end of both. Some would call it hoarding, but I prefer to think of myself as a professional repurposer. :) My dad was never a very emotional person, so...

Hello everyone, About 6 months ago I came upon this site and was blown away by the outpouring of warmth, friendliness, support and wealth of information. You are all wonderful, sharing your stories and experiences for scared 'kids' like me! Thanks to the founders and contributors for this...

I am 34 years and was diagnosed in April. I had bulber onset symptoms 12 months ago but it was dismissed as pregnancy problems. I have 3 kids, aged 6, 3 and 8 months old. I am struggling a bit being diagnosed so young. This is sporadic ALS and I led an extremely healthy lifestyle prior to...