kids

I'm just going to keep this short as I'm already 99% sure I have ALS and just want someone to confirm that my hands look like split hand syndrome. My symptoms started back in June of this year when I was pregnant with my son. I started to have random twitches all over which I still have today...

Thank you all in advance for your time in reading this. I will do my best to keep it as brief as possible. I have read the sticky. I’m 29, stay at home mom of three kids, three and under. About 6 months ago, I noticed some neck stiffness, along with transient pins and needles and numbness...

My husband started out with a weird sensation in the middle of his back with mild pain starting around August. He also started to get numbness and tingling all down the left side of his body. He had 3 MRI’s done and there weren’t any lesions (he was being tested for MS) but did show a very small...

And I wasn't there. I spent two months in Poland with him from August to mid October, and then had to come back to the US to work and to bring my kids back to their dad. My father begged me not to leave. He prayed for a quick death, and he prayed for an easy death. At least those two prayers...

Now nothing is left to speculation. Formally diagnosed at India's best neurological institute NIMHANS...FAMILIAL AND. Do not know what to do next...I have two small kids 11 and 6 year old...as per the docs there riluzole does not help in familial cases n there is nothing that docs can do...

Hello everyone. My husband of 30 years was diagnosed 3rd October 2018 of Bulbar Onset/ALS. It was a relief for us all to have a diagnosis as we was wondering all sorts what was wrong with him. He started to talk slowler than usual in January this year, and gradually got worse over the months...

Hello All, First of I would like to say thank you for opening this forum to people like myself that dont know whats going on with us and are scared sh-less. I think its great that your open to helping both people with ALS and those that are not yet diagnosed or that are just suffering from...

Hi all Firstly, you are all incredible and the way you put up with the clinically anxious is astounding. I have over the last two years had significant health challenges, since developing severe Sepsis, which resulted in kidney and respiratory failure. Since that time I have undoubtedly...

Hi All, I was wondering if you could give me your opinion on my husband. For about a year he was having issues with his back. He tried physical therapy and epidurals. Nothing seemed to help. Fast forward to a couple of months ago...we both started noticing him limping. He noticed that his...

7 1/2 years its been now. from a slight tingle in her left foot to total paralysis took roughly 2 years. very slow decline since then, really where do you decline to? her breathing is compromised, but O2 levels stay up with nightly use of the bi-pap. If it was just us, I'd probably suck it...