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  1. S

    Update - worried again

    Hello everyone, It's been awhile since I posted. Quick refresher, my last neurologist appointment was in November, clean EMG again. I've been having fasisculations for about a year. Lately I've had a couple new symptoms. The twitching was first in my left calves and the pinkie side of my...
  2. 1

    Working on 10yrs with ALS

    My name is Adam and I was diagnosed at Kaiser with ALS in 2000, yes 9 years ago. Re diagnosed by neurologist, re-re diagnosed at Forbes Norris in SF. I started having foot drop, then legs arms etc. I currently have g-tube and wear bipap 24hrs. I thought i'd write some hints and tips that have...
  3. rose

    happy birthday BethU!

    Beth, I've been trying to do something clever with font color for your birthday wish, but my keyboard and/or mouse battery is DYING and my cursor is going crazy and the message keeps going off into nevertobeseenagain land! Here's to wishing you all the best! Please eat cake, and be merry ~...
  4. Danijela

    Diagnosis, work and life

    Hi All, I am 36 years old with a partner who is 41 and has been diagnosed with ALS (upper limb onset) two weeks ago. He noticed weakness in left hand while playing bass approx 1 year ago and after a series of tests over the oncoming months he was officially diagnosed at the specialist ALS...
  5. GigiDi

    last few days... i think.

    hi there, i'm new at this posting thing but not so new to als. some background: i'm 24, and my mom (54) was diagnosed'ed with ALS in the summer of 2004. i live in RI while my my parents & 2 younger siblings live at home in NJ. but i've moved home to be there for the final days. i've heard...
  6. BethU

    Oh, goody. Another MG symptom.

    Sorry ... this is going to be a long one. As I’ve reported here ad nauseum, my bulbar symptoms started with both slurred speech and blurry vision, sometimes double vision. It was the double vision among other things that led to my mis-diagnosis with myasthenia gravis before I was diagnosed with...
  7. S

    Update from Skydog

    Hi guys I posted about three weeks ago regarding my anxiety about the fasiculations occuring over all parts of my body. I saw a GP who prescribed some anxiety meds and have since had an MRI. Appt with a neuro coming soon. I am a 31 year old male. Unfortunately the symptoms keep progressing -...
  8. BethU

    Als & Ftd

    Hi, all .... I know about 20% of PALS also have FTD (frontotemporal dementia), and I think I am one of them. The speech pathologist at UCLA agrees with me (or rather, I agree with her that I have it), and I have some appointments coming up to look at this. My problems started this spring with...
  9. W

    My Dad is writing a book

    Some company hooked my dad up with a really cool device, that hooks up to his laptop. He is able to move his head and click using a small sticker on his hat. On the computer screen he pulls up the screen keyboard, and started writing a book a while ago. He has written over 100 pages now. It's...
  10. D

    What do you think?

    I am a 29 year old male with a pregnant wife and am very concerned. Noticed my right ring finger twitching in March. It stopped for about a month. I now have fasciculations in my right ring finger and one of my thumb muscles. I noticed today that I have a few fasciculations in my left foot...
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