joelc

As some of you know, Jen and I had quite a roller coaster holiday season. For those that dont a quick recap: 37 year old wife Dx with Bulbar Onset ALS in 03/09, PEG in August, our twins turn 3 next Sunday. Dec. 4th Ambulance for respiratory distress Dec. 8th Tracheostomy Dec. 10th transfer to...

Found this one [our forum is already on it!] and added a link to JoelC blog, ALS Guardian Angels and some others! The ALS - Lou Gehrig's Disease Support Center | The Four-Step Process to Recovering from ALS - Lou Gehrig's Disease and Thriving | TheSurvivorsClub.org Really some good information...

can anyone tell me how to find a good naturopathic for glutathione treatment in mass. want to make sure i get one who know's what he is doing... or anyone have one where are they , i will try to send him there and if you could help me get a good one and .....joelc maybe this can help your...

I would just like to extend a super Happy Father's Day to all of you dads here on the ALS forums. Whether you are PALS, CALS or related to someone with ALS, the Dads I know on here are all my heroes. I'm thinking of you Al, super moderator, and all-around amazing guy, Barry my Western Canadian...

Here is what we recently did, friends and family built us a new deck. Here I am before the railing is finished. We still have to stain it but we get immense joy out of being able to be outside and enjoy the beauty of nature. I am not letting ALS interrupt my life! :smile::smile::smile...

I've had an account here for a long time and have only lurked occasionally -- don't remember ever posting. Now that I've located my lost pal joelc, I'll be reading and participating more regularly. Hi to all and I've always been impressed with the site, every time I've been here.

David Cindy and myself are pleased to announce that hopingforcure and JoelC will be joining us as moderators. They both have a wealth of knowledge about ALS and related illness as well as compassion for PALS and CALS. They have both been members long enough to know the high standards we adhere...

. We were interviewed in January and the article just came out in the Vancouver Sun and the Province newspapers Feb 17th. It was done by the ALSA in BC as part of an ALS awareness campaign. Here is the content: “I try to be a positive voice” Joel Cutler always thrived on juggling multiple...

Hi All, I know that this is a question that I should know the answer to but I am just double checking with my experts:-D Freddie seems to be having alot of oral secretions, him being trached and the constant swallowing, is causing me to suction him orally and through his trach. He is on robinol...