ivig

  1. BlsdMama

    PLS and atrophy

    Mayo found a glycine receptor antibody so I'm starting IVIG to see if I respond. However. Frankly? One of my calves (on the weak leg) has atrophy. It's flat and slack. (My neuro has seen this and gave me an EMG. It was clean.) My foot is my biggest weakness -drop foot. But the inside curve...
  2. BlsdMama

    Glycine Receptor Antibody?

    Has anyone else been tested for this? I was dx'd by the U of Iowa Neurology around April/May-ish officially with PLS, moved to ALS Clinic. Asked for a second opinion in June. Was seen by Mayo in Rochester in July. The PLS diagnosis was affirmed. I was tested for Stiff Person Syndrome (GAD...
  3. C

    update

    Hi, I just want to post. Yesterday I come back after check up with emg specialist. So sumarry: - 2,5 years with symptoms. -Brisk reflex overall -stiffnes in libs( after I take prednisone it`s gone, after stoping the steroids it`s back) -symmetrical muscle atrophy in hads and wrst -summetrical...
    • corwin
    • Thread
    • atrophy back burning decline denervation emg fasciculation fasciculations fingers flexing hope hours improvement ivig mnd muscle muscles night nose pain problem problems professor reflex steroids swallowing symptoms tongue tongue atrophy update wrist wrists
    • Replies: 4
    • Forum: Could this be ALS?
  4. E

    EMG Posting

    I am sorry for the delay in responding here. It has a been a hectic few weeks to say the least. Per my previous thread my wife has been diagnosed with "Probable ALS". Here are the EMG results: This was the initial one done by our local neurologist...
    • Evenrude
    • Thread
    • als breathing clinic diagnosed emg ivig medical muscles neurologist neurology pain speech surgery swallowing symptoms twitching weakness
    • Replies: 4
    • Forum: Newly diagnosed
  5. M

    MMN or ALS... Waiting game

    Anyone on here have MMN? I'm experiencing muscle fasciculations, atrophy in hands, arms, legs, feet and probably other places I haven't discovered yet. Lately my lips began twitching. Everything twitches all time but the anxiety of the whole thing is the worst. I would love to hear from someone...
    • mbrown0103
    • Thread
    • als anxiety atrophy fasciculations information ivig love mmn muscle treatment twitches twitching
    • Replies: 2
    • Forum: Could this be ALS?
  6. C

    I'm Not really sure what to do next??

    Hello to all again... My first post was quite some time ago. 02-15-2014... At that time I was headed to University of Michigan Neurological Dept. for my 1st visit to the ALS Clinic. At U of M I went through a barrage of test, over an 8 month period. I went from possibly ALS, to Possibly...
    • crue1965
    • Thread
    • advice als arm atrophy back ball clinic diagnosed emg insurance ivig medical mmn riluzole shoulder symptoms test weakness what to do next? work
    • Replies: 10
    • Forum: Newly diagnosed
  7. S

    Fast progressing?

    Hello, Until 3 weeks ago my brother was having IVIG and hoping for a change of diagnosis to MMN as he seemed to be responding to it. However he then developed leg symptoms for the first time (previously it was all finger and arm) - weakness and shaking, difficulty walking. He had a first episode...
  8. S

    als or mmn?

    Hi, My brother was diagnosis with ALS last July and I've been posting here since then – he's young, has a young family, and is the main caregiver/child rearer of the family – his wife works full time. His little kids adore him. Its been very tragic seeing him unable to lift up his little girl...
    • SBHarley
    • Thread
    • als arm brother caregiver clonus diagnosed diagnosis family finger go away hope improvement ivig kids lift mmn mnd muscle questions symptoms treatments umn worried young
    • Replies: 3
    • Forum: Multifocal motor neuropathy
  9. S

    Medical marijuana

    Hi, I've been posting on here on and off since my brothers ALS diagnosis last July. He's only 40 and has a toddler and a new baby only 8 weeks old. We're all devastated and I've spent a lot of time researching treatments and therapies. His situation at the moment is that he's being given IVIG...
    • SBHarley
    • Thread
    • advice als arm cannabis clonus diagnosis finger ice info ivig marijuana medical medical marijuana mmn mnd muscle shaking support treatments umn weakness worried young
    • Replies: 21
    • Forum: General discussion about ALS/MND
  10. S

    New member with IVIG question

    Hi, My brother has just been diagnosed with ALS. We the family are devastated. He is young with a young family. He has been told he can start IVIG treatment next month. I see that many ALS sufferers on this forum have had IVIG, but my understanding is that it is not appropriate for ALS, but only...
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