insurance

  1. J

    Insurance/Medicare Coverage for Shower-Commode Chair

    I’m a little over two years post diagnosis and was recently denied insurance coverage for a shower/commode chair. I am a federal employee and have been very happy with coverage thusfar (GEHA). As I prepare to appeal the denial, I’m wondering what others’ experiences have been with insurance...
  2. R

    2 months of twitching

    Hello all, I have lurked around this forum for a little while and have read tons of threads and the stickies. I have been avoiding posting for quite some time.But here it goes. It all started when I noticed some twitching in my calves.To which i saw my PCP about and she reffered me to a...
  3. Chincoteaguer

    Back home from hospital

    I apologize for the length of this post but I hope it might help others who have to take their PALS to the ER. We were in the hospital from Thursday morning until noon on Saturday. As I have posted previously the trip to the ER was recommended by our health care nurse based on a false oxygen...
  4. Kristina1

    where do you store trilogy on permobil pwc?

    I don't use bipap during the day, but looking to the future, I noticed the permobil PWC loaner I have has no storage place where you could put the trilogy if you were using it in the wheelchair. I'm told the PWC they are ordering for me through insurance will be similar to this one. So once...
  5. swalker

    Time for a new wheelchair

    As many of you know, I have 4 wheelchairs, one of which has been funded by private insurance. The other three we bought used for particular purposes. The wheelchair funded by insurance is a Permobil C500s VS, which was ordered 4 years ago this month and arrived in January of 2015. It has over...
  6. M

    Seeking Orlando Neuro

    Hello. I Live in Orlando Fl. I am 52 years young seeking a Neuromuscular specialist in my area. I have been getting passed around from physician to physician for 7 months now. My Primary care Physician team feels as helpless as I do and they have worked hard to get me answers. 7 months ago...
  7. T

    PWC forward tilt

    My PALS is getting a PWC in a few weeks. He is trying to decide if he wants the forward tilt. He can't transfer at this point. Would this help with making himself more comfortable with changing positions? Insurance isn't going to pay for it so we need to know if it is worthwhile to add it to...
  8. C

    Worried and confused

    Firstly, I want you guys to know I appreciate you taking the time to read my story. I am a 37 year old male, father of a two year old and I am very concerned about the probability of having a bulbar ALS diagnosis. Symptoms and dates: 1st week July 2018: buzzing in brain for 10 second...
  9. B

    Questions regarding life insurance

    Good morning. 32 years old with two young children and pregnant with my third. Undergoing testing for a neurological issue, with ALS as one clinical possibility although I have no been formally or even informally diagnosed yet. I have life insurance through my employer but no private policy. I...
  10. C

    EMG on untwitching muscles

    Hello, I went to a neurologist who suggested I had ALS based on my signs and symptoms. (Constant muscle fasciculations, positive Babinski sign, left side weakness and atrophy -atrophy in left hand and right around and now both calves- slurred speech and cramps where my muscles get stuck. Also...
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