insertion

  1. F

    Bad EMG results

    Hi, I am scarred to death and mainly looking for similar stories to know how they usually end... 2 months ago, a nice DR told me I might have a brain tumer pressing against my eye causing glaucoma damage. Two days, after getting this IRM, my twitchting started in my right calve, a week...
  2. C

    New Member / Multiple Symptoms / Limb Onset? / Tongue Problems / Help Appreciated!

    New member requesting help and direction. Here's a rundown of my current symptoms and the last 5-6 months. I'll do my best to summarize. My current symptoms are: Subjective weekness in all four limbs, chest, shoulders, back, face, jaws. The weakness in my legs has spread up my legs from my...
  3. lizzie11957

    Clinical Research Drug Trial

    Finished the first screening yesterday. Lots of blood taken and questions asked. Started learning how to change the dressing and administer the meds. My husband and sister will be the prime caretakers. I think they're more afraid than I am. And, although I am a little afraid of the catheter...
  4. Danijela

    clinic update and some questions

    Laurence's FVC sadly continues to decline. August 95%, November 80, yesterday 62. He has now been referred to a respiratory clinic for an assessment and bi-pap. His neuro said he is a good candidate for bi-pap as he has no bulbar issues. They checked his 02 and cO2 levels, both are borderline...
  5. Judith

    Calling all catheter users and those gals contemplating one

    I am seriously considering a catheter due to bladder spasms and the urgency to pee. I am currently on hospice. I spoke with my hospice nurse today. Hospice will cover a Foley catheter but not a Supra-Pubic. To have a Supra-Pubic, I need to go off hospice before I have a doctor consult visit...
  6. halfin

    What kind of Dr. put in your PEG?

    I have a choice between two different specialists to put in my G-tube. At the ALS clinic down at UCLA, it is done by Interventional Radiology. Here locally we would have a gastroenterologist (stomach doctor). The radiologist would use X-rays to guide the placement. The stomach guy uses a scope...
  7. L

    Question about breathing test score

    My mom FINALLY went to her ALS specialist yesterday (she was refusing to go for awhile). I apologize in advance because I don't have much information, but I was hoping someone could help me out. She needed a feeding tube probably a month or two ago. They did the breathing test on her and her...
  8. Miss

    PEG Scheduled

    I just scheduled the insertion of a PEG for my husband - 7/14. We are waiting until we get back from a beach vacation. Now, he is waffling. Any words of encouragement I can give him? I/We know it is the smart thing to do, it just seems so harsh. He isn't having any trouble swallowing yet, but he...
  9. H

    Feeding tubes

    Hi: My wife has ALS. SHe had a feeding tube put in about 2 months ago. About 3 weeks ago she had this changed from the traditional tube to the "button-type" known as a "Mic-Key". Since the button was put in she's had quite a bit of leakage around the insertion point...is this normal? WHen...
  10. L

    Shoulder/deltoid/bicep Atrophy-MND or Injury?

    Hello all, I have been lurking on this forum for about 6 months and I am finally getting the courage to post what I have been experiencing and my source of grief. I do apologize if this is a long post; I did try my best to condense it, but really couldn't as I don't want to leave any important...
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