insertion

  1. A

    Conflicting emg and polyneuropathy axonal type

    First let me say this site and the folks who help are amazing. I hope I have that much empathy in charity in me. Question. I have had two conflicting ncs / emg’s - both ncs showed sensormotor poly neuropathy of axonal type. But here is the carrot. First emg showed increased insertion...
  2. K

    Similar stories

    Hi everyone, thanks for taking the time to read. I posted a couple weeks ago about my mom who is progressing rapidly. She is continuing to progress after her diagnosis on August 24. Most of her words are not audible now and she is getting weaker with transfers from bed to chair etc and is...
  3. J

    Ongoing ALS concerns...

    Hi all, I'm really, really sorry for posting again - my old thread got locked automatically which can be accessed here - https://www.alsforums.com/forum/do-i-have-als-als/40349-another-bulbar-als-thread.html My current symptoms all remain or getting worse since this has started 4 months ago...
  4. Tedstehr

    Canadian Edaravone Instructions - infusion

    I have watched my craigslist nurse (let's call him Craig) prepare and infuse my Edaravone for about 20 times now. And I know others are planning to get "under the table" infusions done too. So I will describe the procedure for those who may need this information. First, Craig lays down sterile...
  5. K

    EMG Done Today - Have some Questions

    Thank you all for your help. I will be very short as I understand and respect everyone's time. Yesterday I had NCV and EMG today and I don't have results yest in online portal. 2.Neurologist herself did the EMG and after test she said that everything is perfect. No fascinations and...
  6. C

    General Anesthesia for peg insertion?

    So there is the question, General Anesthesia for peg placement? Seems like I read somewhere that being knocked out is a big no-no. Someone help me understand. I'm supposed to have this done on Tuesday at University of Kansas Medical Center. Thanks for your help, CarolSue
  7. D

    A complication I never considered!

    I just spent 4 days in the hospital with a collapsed lung and the worst part was a sore butt from the mattress! It started with the sniffles and a scratchy throat. I went to the doctor to see about an antiviral which they recommend right away for ALS people. Turns out that all there is is...
  8. C

    Bulbar & tracheostomy (Endotracheostomy)...

    I'm planning an operation or insertion in January. I understand the basic dynamics of both. However, is there anybody on the forum that has experience with a heavy mucus flow during the use of said device(s). My concern is that the 'baloon' is far enough down the trachea that mucus can...
  9. T

    EMG - is it ever too early?

    Hi - Beginning of September I started getting very noticeable calf cramping - very sudden. When massaging it, I noticed a very noticeable twitch in the calf. A little alarmed, I looked further and noticed both feet, calves and thighs showed the same type of fascination - nearly 24/7. My doc...
  10. affected

    Rig

    After a question in the CALS section that I can't answer from experience, I thought I would start a thread and ask here. I am specifically asking those who have had a RIG insertion instead of PEG - can you explain to me how you are able to use your bipap face mask during the procedure, since...
Top