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Hello, After two years and a half of symptoms, my father has been diagnosed with PLS. We are still quite astonished and it is hard to stomach the truth. Given that the EMG was clean, the doctor thought that this was the most likely cause for my dad's symptoms. We are starting treatment next...

Hi ! I will try to make myself the most clear and brief as possible (you can see my other post for more information). In brief: October 2016: tongue bitting and what lookd like fasciculation (still ther today) December MRI...nothing February 2017: Emg with a specialist in ALS. No sign ALS...

Hello. I want to first say thank you for any information or insight you may be able to give me. I also wanted to say that my thoughts are with you all that have been affected by this disease. I am concerned due to a few reasons. About a week ago, I noticed something was "off" with my left foot...

Hi everyone, I'm very grateful to reach out to the resources on this forum. I've read through the most read posts and have good cause for concern. I'm not sure what information to give you, I believe the most important is the EMG results. My first EMG in October showed extensive motor neuron...

I started having twitching in my calves on March 20, 2018. It was constant and a bit amusing at first- I would put my leg on my husband and make him feel it going crazy. After several weeks, I started noticing that my legs were getting a jello feeling, especially if I was walking on my...

Hello Everyone! My name is Cathy and am new here and trying posting for only the second time. Not so certain about how the rules and regulations work and feeling a bit apprehensive. What do I say to all of you? I am 53 years old and live in Ohio with my husband. We recently became empty...

Hi All, This past Friday, my father was diagnosed with “some form” of ALS by a neuromuscular specialist. He is being sent to an ALS center near him in Potomac, MD, and will get more details on form, prognosis, etc. At this point we know very little, but what we do know - the diagnosis - is...

Hi, I'm new here, so I thought I should introduce myself. After going from doctor to doctor for over a year, my Dad was diagnosed with ALS at the end of Dec. 2107. (I would say his symptoms started in about July 2016.) From what I'm reading it seems to be limb onset, with the greatest affect...

First, I want to thank anyone that takes the time to read this post. I have started to develop weird symptoms that I cannot explain and they are causing severe worry. Background information: 24 year old female, decently active, used to play competitive sports. So, the symptoms started roughly 2...

A special friend (David) of mine and my husbands is a 17-year survivor of ALS. David currently has a Tobii Dynavox I-15 (with eye gaze interaction – AAC device) speech generating device. His AAC device is calibrated to his eyes. David was able to communicate (with his wife and family, also with...