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  1. KarenNWendyn

    Permobil vs Quantum power wheelchairs

    I posted recently with questions regarding the Permobil F3 (I’m currently borrowing one from my loaner closet and like it so far). That previous thread is here: https://www.alsforums.com/forum/general-discussion-about-als-mnd/42619-question-you-wheelchair-geeks.html I did receive a gift of a...
  2. S

    Not sure it’s ALS

    Hello, for about 3 months I have been having very odd symptoms. Twitching all over, face spasms when squinting or smiling, lost a lot of stamina , 3+ brisk reflexes and now this past week I’ve had arm weakness. I have seen a neurologist and he said everything is probably normal but he’ll...
  3. D

    ALS fears

    Hi guys, I’m really new to this thread and have read all the information before posting this. I’m really scared at the moment. A few days ago I noticed a sudden weakness in my left leg. This wasn’t gradual and as I say, very sudden. I can still walk properly, walk on my tip toes and I don’t...
  4. 1

    Please please help with my symptoms!!

    Hi all, I am so very hopeful that somebody can either put my mind at rest or give me the strength I need to really push my doctor for some more information. I am a 36 year old female. For the past few weeks I have noticed that I am having muscle twitching or "fasciculations' all over by body...
  5. KimT

    Physical Therapy

    I had my first appointment with the physical therapist today. I was with him for an hour and a half and he did a thorough evaluation. He has worked with MS patients (one was there at the time I signed in) and he actually requested more information about ALS. He understood the disease but...
  6. D

    Trilogy with Passy-Muir valve?

    I was recently switched from an LTV950 to a Trilogy. I have always been able to speak easily on the LTV with my cuff deflated. An additional 5 of PEEP from an inline valve allowed more than one or two words per breath. With the Trilogy, I am back to one or two words and it a horrible step down...
  7. J

    VETERAN Discussion Rating increase R1 to R2

    Looking for specific information on going from R1 to R2 Getting R1 was not hard, just told PVA rep and done R2 seems an struggle. Sent VA Dr Support Form VA FORM 21-2680 Examination for Regular Aid and Attendance, PVA requested letter 2. Got that, put in packet. VA sends me one inch thick...
  8. Q

    I received this report summary for the EMG/ physical examination from the neurologist

    I want to start off by expressing my appreciation for the help I am receiving. Thank-you for taking the time out of your day to selflessly help me here. Here is the physical examination, EMG findings, and future plan from the neurologist/doctor. Location EMG/ NCS performed: Only on the right...
  9. J

    Difference between diagnoses

    Friend, 61 yo, thought that she had als. after examination where everything was ok, she is suffering for a 4 years and finally she got diagnose: code g54.5 - neuralgic amiotrophy. she had all symptoms identical like me, but i'm "right side", she is left side". she doesn't use internet, so i am...
  10. D

    Compensation and Pension (C&P) exam for an increase SMC payment

    Veterans with ALS need to know that in order to get their special monthly compensation (SMC) increased as their condition worsens they will need to get a Disability Benefits Questionnaire (DBQ) filled out by a doctor of your choice or submit for a C&P exam arranged by the VA. My recent...
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