information

  1. J

    switch access for Android

    Operate your smartphone or tablet with just one button! Now also for my free communication app. More information on the page of Smart Letter Board Smart Letter Board - Switch Access
  2. P

    Scared about ALS

    Thank you in advance for your help. I am a 56 year old woman. I have been terrified of ALS for several months and am looking for some information regarding how this disease would affect feet. I am getting a lot of pain in my arches, especially if I attempt to jog. My feet and/or toes will...
  3. K

    Laryngospasm, Suddenly Can't Breath: Information Videos/ Straw Breathing Technique

    Hello all, After a hairy morning of my mother's sudden and repeated laryngospasms, I found these two short videos online, which explains the causes, and a technique to deal with it and how that works. "Just" relaxing helped, however, I'm looking forward to introducing straw breathing technique...
  4. G

    Please Review and Comment: ALSinfo

    Essential information for the newly diagnosed! This is my magnum opus. This, along with my other documents and efforts to support the ALS community, is how I justify my continued existence and attempt to make amends for a lifetime of hubris. I have just begun my 7th year post diagnosis and I...
  5. R

    need opinions and guidance

    Hello to all, I am new to this group and would love some information and perspective on people who have seen this terrible disease first hand. I am posting for my mother who is 58 years old and experiencing an array of symptoms and problems for about 5+ months now. This all started back in...
  6. S

    Opinions on Symptoms

    Hello everyone. First off, I would like to say thank you so much for the continued support you provide to people who are scared about symptoms or newly diagnosed with ALS. A bit of background information about myself: 27 y/o caucasian female who is in the midst of evaluation by a...
  7. K

    Fearing For My Life, Please Help

    Before I say anything I just wanted to say that YES, I have read the stickied “read before you post” I am a 19 year old male. Starting in the beginning of November I began to experience constant twitching in my calves. The twitching is 24/7, it does not stop. The only thing that will change is...
  8. T

    Nuedexta as needed?

    Does anyone take this drug as needed, for example when planning to be around people, etc. or take it on a different schedule than manufacturer recommendations? I did a search but couldn’t find any information. I started a half dose (one pill) last week and within 24 hours noticed a definite...
  9. J

    Confused, looking for clarity and perspective

    Hello everyone, I Am brand new to this forum but I would like to take a minute to say thank you all so much for what you are doing to provide support for PALS, CALS and people like myself who are seeking knowledge and peace of mind. I cannot say that I understand all that you're going through...
  10. D

    Sensorimotor polyneuropathy and ALS

    In addition to ALS I was told that I also have Sensorimotor Polyneuropathy, but that I need no treatment for it. Anyone have information on this combo? Evidently the first neurologist I saw in Lafayette, IN, who did a less extensive EMG than the muscular neurologist at Rush in Chicago, added...
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