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Hello everyone, First I'd like to say that those of you who answer everyone's questions and provide useful information are truly truly incredible. Unfortunately some persisting symptoms have led me here looking for opinions. Here is a brief timeline: May 2016: right arm/hand stiffness, popping...

I have recently been getting very worried about ALS and if I may have it or not. I've read many things that contradict each other on various places but here seems to be the place where I could get some reassurance. To start off I'll tell a little about myself. I am 16, male and I'm 120 pounds...

I am 61 years old and use both tricare & VA for healthcare Is there some advice on how to negotiate the best deal on home health care. My wife is physically not able to do it with her current illness. I am not in need just yet I just want to get a plan together for the future. Thanks in...

My speech therapist gave me information on Message Banking at messagebanking.com so that I can preserve phrases of my speech to use later, since my speech is changing. The website doesn't seem to be working. Has anyone else tried to use this website? Any ideas on how to access this so I can...

I received my official diagnosis of ALS on 12/16/16. I knew in my mind that I had it, but was continuing to hope and pray for an alternate diagnosis. I've had some minor progression in my speech articulation and some vocal quality (raspy) changes in addition to EMG findings on my tongue and...

Hi everyone, I have been reading through the forums for a while now and decided I needed to post .. I have read so much conflicting information that its making my head hurt .. I will try to keep as short as possible.. About 3 months ago out of nowhere I had a muscle spasm /twitch...

I do not come out on either side of the suicide or physician-assisted suicide issue, but I do staunchly support the right of PALS to be fully informed about their prognosis and treatment options. Indeed, in every debate concerning physician assisted suicide, all sides agree that the patient...

Compass Research is participating in this research project and is opening a facility in The Villages FL. They are currently recruiting for the trial. Trial: Single and Multiple Dose Study of BIIB067 (Isis-SOD1Rx) in Adults With Amyotrophic Lateral Sclerosis (ALS) | ALS TDI Anyone have any...

Any information on this from anybody? NurOwn My sister sent it to me but it doesn't even describe what it is ! Smells fishy! Chally

I thank everyone past and present for all the information and support provided on this forum. This forum was my lifeline and best source of information. My love passed a year ago this October and it tears my heart out every time I come back now. I think I was numb for so long but it keeps...