info

  1. Lynda

    Cooler on wheels for work

    Hey everyone, This might not be your typical "ALS gadget" but I'm hopeful you guys might have good ideas. Right now, I pack up my husbands snacks/lunch and 2 protein shakes in thermoses and he brings it to work with him to have throughout his work day. The foods are in a typical handheld...
  2. G

    Concerning Symptoms

    Hey Yall! Really hope I'm not supposed to be here, but I have a few questions. Little over a year ago I started getting twitches all throughout my body. Shortly after, my right leg began to feel funny. At about the same time, my right foot started getting these really fast twitches and cramp...
  3. E

    Google's outrageous description

    I'm on another ALS group on the internet and this came to our attention. Here is a picture.... If you google "What is ALS", this is what comes up. They declare it is a MANAGEABLE DISEASE, and treatment can help! Who are these morons at google? There is an option to respond if you feel so...
  4. B

    Mayo Brainstorm Nurown Stem Cell

    Mayo is conducting clinical trials on the Nurown Stem Cell application. They are accepting limited enrollment. The email address is [email protected] If you contact them and give them your name, age, address and contact info you will be put on a waiting list. Worth a shot. Vince
  5. W

    Waiting.....

    Hi everyone ....I have read all of your posts and it is heartbreaking...I wouldn't wish this disease on my worse enemy..here is some background on me. I am a 37 year old female with a history of familial ALS. My grandfather, aunt and an uncle have passed and most recently my father in November...
  6. E

    genetic testing and sporadic als

    This may be an ignorant question. My wife has been given the diagnosis of "Upper Motor Neuron Disease". She has three cousins that have "Rapid Onset Dystonia Pakinsonism". The neuro wants to do genetic testing on my wife, one cousin, and the parent who had the mutation. I do not know what...
  7. S

    Scared of what my results will be

    I am 40 have balance issues, fasciculations, numbess especially in left foot and pinky and ring finger on left hand, found out a week ago after ruling out thyroid and likely not MS due to my MRI 2 years ago was fine, the DR said I have muscle atrophy in both hands on top and palms, and left...
Top