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  1. A

    Voice banking

    How do you begin this process? What is the best option/product? Thanks for all your info in advance! I know I'm in good hands on this sight. I feel like the young kid on the block who knows nothing..yet! Blessings Alana:)
  2. M

    Intermittent Fasciculations

    It has been awhile since I have posted! I started my journey a little over 2 years ago and it has been verified that I do have Upper Motor Neuron issues, however, my question at this point is I realize there is a "time frame" for ALS (about 15 to 18 months from the start of symptoms) but I have...
  3. strongman

    Strongman is here ( so is fear)

    Hey all. I've been checking out this forum over the last few months. Today I was confirmed by second opinion neuro with ALS. I had slight left-hand weakness starting in 12/2014- it has gotten worse all over my body. I'm still mobile, but stairs and walking wear me out. I had to stop...
  4. Lynda

    Cooler on wheels for work

    Hey everyone, This might not be your typical "ALS gadget" but I'm hopeful you guys might have good ideas. Right now, I pack up my husbands snacks/lunch and 2 protein shakes in thermoses and he brings it to work with him to have throughout his work day. The foods are in a typical handheld...
  5. G

    Concerning Symptoms

    Hey Yall! Really hope I'm not supposed to be here, but I have a few questions. Little over a year ago I started getting twitches all throughout my body. Shortly after, my right leg began to feel funny. At about the same time, my right foot started getting these really fast twitches and cramp...
  6. E

    Google's outrageous description

    I'm on another ALS group on the internet and this came to our attention. Here is a picture.... If you google "What is ALS", this is what comes up. They declare it is a MANAGEABLE DISEASE, and treatment can help! Who are these morons at google? There is an option to respond if you feel so...
  7. B

    Mayo Brainstorm Nurown Stem Cell

    Mayo is conducting clinical trials on the Nurown Stem Cell application. They are accepting limited enrollment. The email address is [email protected]. If you contact them and give them your name, age, address and contact info you will be put on a waiting list. Worth a shot. Vince
  8. W

    Waiting.....

    Hi everyone ....I have read all of your posts and it is heartbreaking...I wouldn't wish this disease on my worse enemy..here is some background on me. I am a 37 year old female with a history of familial ALS. My grandfather, aunt and an uncle have passed and most recently my father in November...
  9. E

    genetic testing and sporadic als

    This may be an ignorant question. My wife has been given the diagnosis of "Upper Motor Neuron Disease". She has three cousins that have "Rapid Onset Dystonia Pakinsonism". The neuro wants to do genetic testing on my wife, one cousin, and the parent who had the mutation. I do not know what...
  10. S

    Scared of what my results will be

    I am 40 have balance issues, fasciculations, numbess especially in left foot and pinky and ring finger on left hand, found out a week ago after ruling out thyroid and likely not MS due to my MRI 2 years ago was fine, the DR said I have muscle atrophy in both hands on top and palms, and left...
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