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  1. starente15

    Bath remodel almost there!

    I'm happy to report the bathroom is in the 'finishing touches' stage as of today. Once it's all dolled up I'll post final pics We weren't able to use the VA grant because we were too far behind the ball in getting things sorted out, but we were able to get a good deal on the work through a...
  2. 4tloml

    Low Nighttime O2 Sats

    We've been checking my husband's O2 during the day but hadn't at night. He has complex sleep apnea and REM Behavior Disorder (RBD) and has been on melatonin and a "Respironics BiPAP autoSV Advanced" for around 2 years at night. He's been on the Trilogy on and off throughout the day since...
  3. S

    Add me too

    Hi my name is Sandy, I was diagnosed in June with ALS bulbar onset. I'm trying hard to sort through all the info and find something that will truly slow this disease down. There is so much info and I'm not sure what's legit and what's not. Mine started Nov. last year I noticed that...
  4. D

    Please do not say thank you...

    I want to start my first post here by saying regardless of the actual diagnosis I eventually receive, ALS, BFS, MS, Stress, MGUS, MM, etc (i'll explain in another post). I want to say this process has not only helped educate me about this terrible disease but reading through different areas has...
  5. starente15

    Anyone know how TriCare works?

    Howdy folks. I just visited my parents and got my hands on all the contact info (emails and phone numbers) to try to stay on top of the VA process (what a nightmare!). I haven't yet found out how ordering a power wheelchair through the VA works. If it's paid through TriCare, Hospice can...
  6. swalker

    Wheelchair Accessible Pickup

    I have posted in several other threads about how my van is serving me well, but that I lust after a 4x4, high-ground clearance, wheelchair hauler. Yesterday, I went to McDonalds with a friend and his young daughter. When I pulled in, the only handicap spot was occupied by a pickup. No big...
  7. B

    Alternative Methods

    I've spent a fair bit of time reviewing the info at ALS Untangled, and from what I know, it's a reputable site for PALS re: alternative methods of treatment. The site dismisses most of the remedies out there, although does suggest that "further research" is warranted on some items - for...
  8. Nuts

    How would you improve your PWC?

    I've struggled with where to post this, so please move it if there's a better place, Nikki. I've been working with a design engineer from Invacare who is looking for feedback from PALS and CALS on how we use the chairs and what limitations we still face in order to assist him with the design...
  9. T

    looking for old thread re ALS /conversion disorder

    Hi Everyone, I don't have ALS, but helped my sister care for my brother-in-law who had it. He passed away 5 years ago. That was the last time I came to this forum. I found a thread here while searching for info on ALS and conversion disorder. My friend told me that she has ALS. This was a...
  10. A

    Voice banking

    How do you begin this process? What is the best option/product? Thanks for all your info in advance! I know I'm in good hands on this sight. I feel like the young kid on the block who knows nothing..yet! Blessings Alana:)
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