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  1. A

    lots of als equipment for sale

    My father passed away last August from als and I am trying to help my mother sell his equipment so she does not lose her home...If there is anything your interested in please message me with an offer or for pictures. Thankyou Tobii i-15 with eye gaze used only once or twice Permobil 2011...
  2. karla r

    Still working on ALS Clinic

    I am really now unsure where to go from here. Have been trying to keep posts at a minimum, and here is why. Had appointment with my primary doc. He said to keep my follow up with #2 neurologist. If he didn't send me on to the ALS clinic for eval, then go back to the 1st, and see if she can make...
  3. A

    Cluster of symptoms

    Thank you so much for taking the time to read my post. I've been experiencing muscle twitches throughout my body since July of 2015, 7 months ago, starting mainly in my calf, although I also remember one night of persistent right bicep twitches in July. At that time I made the mistake of...
  4. M

    Voice Banking Question

    Can anyone give me some info about voice banking or assistive communication. I have read some stuff but I am totally confused about what I will need. My voice is okay right now but I guess now is the time to do something. Thanks Wendy
  5. ShiftKicker

    Dexamethasone or other steroid treatment for PLS?

    Hello- Looking to hear from others with primarily UMN symptoms if they've tried steroids, and if they experienced reduction in spasticity/increase in energy. I'm still searching for something to help my fatigue. A year ago I had dental surgery and received 4 days' worth of dexamethasone for...
  6. C

    Got the dreaded news...

    Hello, I posted on here a month or so ago under the "do I have ALS" section. Well I'm back as a full fledged member, I guess, I got my ALS diagnosis one week ago. I had the nerve conduction study January 18th and the neurologist told me immediately when he was finished. Although he said...
  7. maryhahnward

    Veterans with ALS Caregivers info...

    Caregivers of veterans with ALS are welcome to join a community of military/veteran caregivers. The Elizabeth Dole Foundation was created to assist and support military/veteran caregivers. "Our nation’s military caregivers need and deserve robust, effective support in light of the mental...
  8. A

    Concerned twitcher

    Hey all, I've read the stickied threads and they've somewhat given me a ray of hope, but over the last few days I've all but convinced myself I have something like ALS. About a week ago I developed a very pronounced "throbbing" twitch in my left hand between my thumb and forefinger -- around...
  9. fizz

    First pulmonologist appointment today...

    I went to the hospital for a visit today, because as my breathing gets worse, we've had to seriously consider adding a BiPAP to my conglomeration of various medical gear. I was so nervous, but it turns out I didn't really have any reason to be. I've had some bad experiences with doctors in the...
  10. S

    Newly diagnosed - umn predominant als

    Hi! Recently diagnosed and new to the whole blog/forum thing! Looking for any advice or info from other people going through similar things. Thanks
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