indianapolis

  1. D

    Diagnosed in October

    After nearly 4 months of tests and 2 EMGs I have been diagnosed with ALS. Looking back a few years I can see small changes in health that progressed to this diagnoses. Next month I will be 77. I am going to my first visit at an ALS Clinic (Indianapolis) on Tuesday and am preparing a list of...
  2. W

    Indy Walk to Defeat ALS

    Finally got the team photos from our Walk and wanted to share. We were blessed with 202 team members and raised $14,270.00 for the Indianapolis Chapter of the ALS Association. That's me front and center, behind the banner. The little girl to the right is not family but to the right of her is my...
  3. D

    Als clinic indianapolis

    Good afternoon, My name is Debbie and I live in Indianapolis, IN. I am writing today to get personal input as to what I need to expect next during the diagnosis process and anything you can recommend as I go to upcoming appointments. To give you some background information, I have been to my...
  4. A

    Honey Bee Venom

    I'm recieving accupuncture at the National University of Health Sciences in Lombard IL. Many MD's and other modalities taught w/in this University. The needles are dipped in a Homopathic bee venom. I normally would have started right out w/a bee sting but I was stung twice in 09 by wasp's & went...
  5. J

    Need a doctor---please help

    My wife started mild speech problem about 1 yr ago--it has now progressed to significant slurred speech and has swallowing difficulty and other issues. She has seen a neurologist and several ENTs that did nothing other than send to speech therapy. In surfing the internet for slurred speech i...
  6. L

    ceftriaxone trial stopping

    Just got the word from our neuro in Indianapolis. Ceftriaxone trial is being stopped. Not meeting criteria ect, ect. We will set appt to have final study visit and hickman cathater removed in the same appointment. Almost two years down the tubes. Still don't know if real stuff or placebo...
  7. R

    Super Bowl Pregame

    Today will be a huge day for ALS awareness... Ex-Saints player and ALS patient Steve Gleason visits Super Bowl, hoping to raise awareness - The Washington Post Latest reports on twitter are that the segment will run on the NBC pregame show around 4:37 pm EST. Pics have posted on Team Gleason...
  8. jmaycavagnol

    Does anyone know anyone in the COLTS organization?

    I sent this letter to the Peyton Manning Peyback Foundation today; if anyone knows anyone associated with the Colts would you please contact me. Hello: I am contacting you today regarding my Mother, Vera. My family has been in Carmel, IN for 35 years although I currently live in Houston...
  9. R

    If you are in central Indiana or have friends or family there...

    Tonight (Friday, October 22) ... Warm up the televisions! Please spread the word that WTHR Healthbeat Reporter Anne Marie Tiernon’s interview with Dr. Pascuzzi at the clinic and PALS Carey Hall and wife Carla at the Sarah Fisher Racing garage is to air tonight between 5 and 6 pm—probably right...
  10. R

    Assistive Technology Seminar in Indy

    ALS, MS and Assistive Technology Training - Eventbrite WHAT: ALS, MS and Assistive Technology Training WHEN: Friday, November 12, 9 a.m. to 1:30 p.m. WHERE: Easter Seals Crossroads, 4740 Kingsway Drive, Indianapolis IN 46205 WHO SHOULD ATTEND: Individuals diagnosed with ALS or MS...
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