After nearly 4 months of tests and 2 EMGs I have been diagnosed with ALS. Looking back a few years I can see small changes in health that progressed to this diagnoses. Next month I will be 77.
I am going to my first visit at an ALS Clinic (Indianapolis) on Tuesday and am preparing a list of...
Finally got the team photos from our Walk and wanted to share. We were blessed with 202 team members and raised $14,270.00 for the Indianapolis Chapter of the ALS Association. That's me front and center, behind the banner. The little girl to the right is not family but to the right of her is my...
My name is Debbie and I live in Indianapolis, IN. I am writing today to get personal input as to what I need to expect next during the diagnosis process and anything you can recommend as I go to upcoming appointments.
To give you some background information, I have been to my...
I'm recieving accupuncture at the National University of Health Sciences in Lombard IL. Many MD's and other modalities taught w/in this University. The needles are dipped in a Homopathic bee venom. I normally would have started right out w/a bee sting but I was stung twice in 09 by wasp's & went...
My wife started mild speech problem about 1 yr ago--it has now progressed to significant slurred speech and has swallowing difficulty and other issues. She has seen a neurologist and several ENTs that did nothing other than send to speech therapy. In surfing the internet for slurred speech i...
Just got the word from our neuro in Indianapolis. Ceftriaxone trial is being stopped. Not meeting criteria ect, ect. We will set appt to have final study visit and hickman cathater removed in the same appointment. Almost two years down the tubes. Still don't know if real stuff or placebo...
Today will be a huge day for ALS awareness...
Ex-Saints player and ALS patient Steve Gleason visits Super Bowl, hoping to raise awareness - The Washington Post
Latest reports on twitter are that the segment will run on the NBC pregame show around 4:37 pm EST.
Pics have posted on Team Gleason...
I sent this letter to the Peyton Manning Peyback Foundation today; if anyone knows anyone associated with the Colts would you please contact me.
I am contacting you today regarding my Mother, Vera.
My family has been in Carmel, IN for 35 years although I currently live in Houston...
Tonight (Friday, October 22) ... Warm up the televisions!
Please spread the word that WTHR Healthbeat Reporter Anne Marie Tiernon’s interview with Dr. Pascuzzi at the clinic and PALS Carey Hall and wife Carla at the Sarah Fisher Racing garage is to air tonight between 5 and 6 pm—probably right...
ALS, MS and Assistive Technology Training - Eventbrite
WHAT: ALS, MS and Assistive Technology Training
WHEN: Friday, November 12, 9 a.m. to 1:30 p.m.
WHERE: Easter Seals Crossroads, 4740 Kingsway Drive, Indianapolis IN 46205
WHO SHOULD ATTEND: Individuals diagnosed with ALS or MS...