increase

Hi Laurie I need to increase the IPAP on my Trilogy. The Pulmonologist clinic is taking too long to respond. The manual won't instruct how to get into the pressure and volume settings. Thanks Bruce

I hope it may defer some to look further, to dig deeper or to stop life when there is no reason. I come from a family with a genetic disease that has meant death for all women on my maternal side before the age of 55. I never thought closely about that, until I was somewhat older (36) and had...

Hello, Thank you for allowing me in your group. My sister was diagnosed in 12-12-13, she passed 5-4-15. There are 7 children total, a brother died at 22 months unrelated to ALS, all in relatively good health. My mother is adopted. Both parents 86, still living and in relatively good health. My...

Hello everyone! Long-time lurker since all this started back in August of '16. I was reading and learning as I came back to the site once a week or so. I guess I'll just jump right in. Male. 31 years old. 13 years in the restaurant industry as server/bartender/manager. Just graduated...

My PALS so far has refused a feeding tube. His weight has gone down considerably. He talks about he is burning up to 30% more calories a day then the average person. He has started eating shakes and states he has cashews and other good fats at work. I guess I am wondering, even with these food...

Haven't found much related to this but having an issue maybe someone can help with. Was diagnosed about a month and a half ago with ALS. At the time Fasciculations were isolated to my left leg in which I have foot drop. They were absolutely pounding jumps at my knee cap. Maybe an occasional...

We all know how expensive this disease is and how it can devastate one financially. I thought it would be good to start a thread of tips for dealing with the money issues of this disease. I know when I first suspected I had ALS, I needed to decide whether I would take my pension in a lump sum...

Hi All, As most of you know we have been at this for a very long time. You may have been told that ALS will not affect your bladder/bowels. That may be the case if your PALS goes quickly, but if you choose to vent and they stick around longer than the suggested time frame, you may end up...

My PALS (my mom) was a smoker when she was diagnosed in July 2014 with motor onset ALS. As the decrease in her ability to use her arms and hands outpaced the decrease in her lung function, her ability to enjoy her daily cigarettes became compromised only by her ability to lift the cigarette to...

I know how hard it is to get to the bathroom and I know we're not as active as we used to be but please remember we still need water. I just spent 6 days in the hospital. Dehydration, acidosis, uti, electrolytes depleted. Was on iv the whole time. Had 2 meds plus magnesium and potassium...