increase

  1. M

    Very Scared Bulbar Als??

    Hello everyone. I will try to explain what I have been going thru and any advice would be appreciated. I’m a 38 year old male. I started having dizziness in December 2017. I then had some left sided facial tingling around January 2018. For this my doctor ordered a Mri of brain and...
  2. Kristina1

    jaw clenching

    Lately I'm having a lot of involuntary jaw clenching. Does anyone know if this is just stress or if it is another random UMN thing? I have a LOT of cramps, over-active reflexes, spasticity etc. Is this another thing like that, or just stress induced? The reason I ask is because I think I...
  3. L

    14 years of symptoms (and now scared)

    Hi , male 34 years old, italian (milan). first of all: 1) sorry for my bad english (I will try to help myself with google translate, anyway you will find many errors in writing in English, sorry) 2) I dont want to be annoying for any of you, I understand very well your sufferings and respect u...
  4. J

    VETERAN Discussion Rating increase R1 to R2

    Looking for specific information on going from R1 to R2 Getting R1 was not hard, just told PVA rep and done R2 seems an struggle. Sent VA Dr Support Form VA FORM 21-2680 Examination for Regular Aid and Attendance, PVA requested letter 2. Got that, put in packet. VA sends me one inch thick...
  5. G

    My symptoms and their progression

    First of all I would like to thank anyone who will take their time to read my post and maybe provide some information about my symptoms. I have read the sticky post "read before posting" but I still had to post. I know it's long - I just realized it now that I posted a preview. I also hope I...
  6. D

    Compensation and Pension (C&P) exam for an increase SMC payment

    Veterans with ALS need to know that in order to get their special monthly compensation (SMC) increased as their condition worsens they will need to get a Disability Benefits Questionnaire (DBQ) filled out by a doctor of your choice or submit for a C&P exam arranged by the VA. My recent...
  7. Kristina1

    weight and supplementation frustration

    My weight has been steadily dropping, and I was re-assessed by the nutritionist regarding my tube supplementation. I was supplementing about one carton per day, and she said she wanted me to gain 10-20 lbs, and changed my prescription to 4.5 cartons per day. Part of the reason for the massive...
  8. KarenNWendyn

    Rate of disease progression

    I’ve read people on this forum saying “progression is slow until it’s not”. I’ve also heard stories about people diagnosed with ALS/ MND who look back and realize they had inklings of their disease years before diagnosis. My own experience is that I may have had some signs of ALS a few years...
  9. A

    Wish I never watched ALS videos but....

    Hello - I am a 38 year old male 6'0 173 lbs Medication: Adderall, Zoloft, Kratom I been noticing lately that I get very tired when walking up hills or stairs. After the second flight my thighs really start to burn. I am not out of shape but I also don't work out regularly. I have about 2...
  10. T

    DIET and WEIGHT.

    Hi all. My consultant here in the UK says it is better to increase calories 20% as muscle twitching usually saps energy. I found that I actually put weight on during my first six months of action . I started to try to drop some of that excess 20LBS with a healthy liquid fast ( Teas, Bio...
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