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Hereditary FTD and ALS
Hi there- really struggling to ask this question as I prefer not to know but it will influence my decision to have children. My mom passed last away last August from ALS with FTD. My family history on her side is not great as they werent a close family, but neither of my grandparents had it and...- Nuch
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- als brother children familial family family history ftd help! increase sporadic symptoms test
- Replies: 3
- Forum: ALS and frontotemporal dementia
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I know better, but...
I have been reading these DIHALS posts for over a year now. I have learned - widespread twitching is not a first symptom of ALS. (Mine started 4/11.) I have learned - get an EMG. If it is clean - no ALS. (I had a clean EMG about 8 months ago.) I have learned - ALS symptoms don't come and go...- beaumonde
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- als symptoms anxiety arm back bfs clean emg diagnosed diagnosis dihals emg emg? fear foot friend increase lyme meds mri problem reading symptom symptoms test tests twitching weakness work
- Replies: 9
- Forum: Could this be ALS?
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ALS Canada Hill Day June 4-5, 2012
Advocacy ALS Canada Hill Day June 4-5, 2012 ALS Canada is working hard to improve the quality of life for people living with ALS. That means advocating on their behalf – and their family caregivers too – as they often experience financial hardship in the wake of this disease. We will bring...- CGARS
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- als als awareness awareness breathing caregivers caregiving chair christmas death diagnosed disability eating family family member finance financial health home care hours ice increase information insurance life meals medical medicine mobility neurology professor quality of life risk story symptoms vacation
- Replies: 1
- Forum: General discussion about ALS/MND
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Great information on health Anxiety.
Health anxiety is an anxiety disorder that is often housed within the Obsessive Compulsive Disorder (OCD) spectrum of disorders. Those affected by health anxiety have an obsessional preoccupation with the idea or the thought that they are currently (or will be) experiencing a physical illness...- Alyoop
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- age anxiety brain contagious death diagnosis dry mouth family fear free headache health heart hiv increase information lead life medical mri onset pain problem problems questions reading relative surgery symptoms tests vision women work
- Replies: 8
- Forum: Could this be ALS?
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Rejoicing
On Saturday, my PALS`completed the 2nd year of living after Amyotrophic Lateral Sclerosis was made official to us on April 21, 2010. Oh my goodness ~~~~ TWO YEARS OF LIVING. I think about adaptations we have made both physically and emotionally to our lives and I am overcome with emotion...- retiredmus2010
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- ability chair hope increase life mobility movement muscle muscle weakness power technology therapy weakness
- Replies: 16
- Forum: Stories of hope
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Unexplained silence regarding possible ALS risk factors & prevention
A big hello to everyone on this forum, :smile: I'll keep this post as simple as I possibly can. I personally do not know anyone who suffers from ALS (Lou Gehrig's Disease), and I don't suffer from it either. What got me interested about ALS is very simple. I heard about it, and started...- Michaels
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- als blog drugs familial free healing hope increase information lead lou gehrig's disease medical medicine mercury neurology possible als reading research risk support unknown work
- Replies: 8
- Forum: General discussion about ALS/MND
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Als care within the va
I am very concerned about the type of care our veterans are receiving from the Department of Veterans Affairs (VA), and the lack of clear guidance and policy on the most effective ALS care protocols throughout the VA. Instead of being seen by an accredited multi-discipline care team most...- desertcat6
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- als als clinics clinics cost death diagnosed diagnosis health increase insurance life medical medicare military onset progression quality of life senate symptoms veterans
- Replies: 4
- Forum: People with ALS (PALS)
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How I found out I had this terrible disease
It started with me as a teen back in the 1970’s I broke my right index knuckle several times over during the years. Each winter my right hand was no good in the cold weather the finger was in effect dead in 2009 the knuckle got so bad that I could no longer even write or sign my name and had...- Poet Chistopher Robin
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- arm awareness back balance brain breathing chair cold cramps cure diagnosis disability eating family finger hearing housing increase life mnd mobility muscles oxygen pain paralyzed pbp possible a problems quality of life reading slurred speech spasms speech support symptoms women wrong
- Replies: 7
- Forum: General discussion about ALS/MND
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Layman's Interpretation, please
I ask of your forgiveness ahead of time if I am being overly apprehensive and cause any disrespect. We were told in a former post that some on here are great at the reading of EMG, NCV and SFEMG and translating them into layman's terms. I humbly and nervously am asking that of you, please...- deana
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- arm clinical denervation early emg exercise increase media motor neuron disease muscles myasthenia gravis reading symptoms test
- Replies: 22
- Forum: Could this be ALS?
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EMG/NCS Findings -- Is this ALS?
Hi Everyone, First off, thanks for your endless patience with those of us who are nervous about our symptoms. I hope you have time to answer my question. I've been a member of ALS Forums for over two years. My brother died of ALS in August 2011. He told me that he had intense muscle cramps...- Daphne
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- als als symptoms als? brother clinical cramping cramps cure diagnosis early emg fasciculation father fatigue free hope increase is this als is this als? life medical mnd mri muscle neurologist pain progressive weakness symptoms therapy twitches twitching ultrasound weakness work young
- Replies: 12
- Forum: Could this be ALS?