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  1. N

    Hereditary FTD and ALS

    Hi there- really struggling to ask this question as I prefer not to know but it will influence my decision to have children. My mom passed last away last August from ALS with FTD. My family history on her side is not great as they werent a close family, but neither of my grandparents had it and...
  2. B

    I know better, but...

    I have been reading these DIHALS posts for over a year now. I have learned - widespread twitching is not a first symptom of ALS. (Mine started 4/11.) I have learned - get an EMG. If it is clean - no ALS. (I had a clean EMG about 8 months ago.) I have learned - ALS symptoms don't come and go...
  3. CGARS

    ALS Canada Hill Day June 4-5, 2012

    Advocacy ALS Canada Hill Day June 4-5, 2012 ALS Canada is working hard to improve the quality of life for people living with ALS. That means advocating on their behalf – and their family caregivers too – as they often experience financial hardship in the wake of this disease. We will bring...
  4. Alyoop

    Great information on health Anxiety.

    Health anxiety is an anxiety disorder that is often housed within the Obsessive Compulsive Disorder (OCD) spectrum of disorders. Those affected by health anxiety have an obsessional preoccupation with the idea or the thought that they are currently (or will be) experiencing a physical illness...
  5. retiredmus2010

    Rejoicing

    On Saturday, my PALS`completed the 2nd year of living after Amyotrophic Lateral Sclerosis was made official to us on April 21, 2010. Oh my goodness ~~~~ TWO YEARS OF LIVING. I think about adaptations we have made both physically and emotionally to our lives and I am overcome with emotion...
  6. M

    Unexplained silence regarding possible ALS risk factors & prevention

    A big hello to everyone on this forum, :smile: I'll keep this post as simple as I possibly can. I personally do not know anyone who suffers from ALS (Lou Gehrig's Disease), and I don't suffer from it either. What got me interested about ALS is very simple. I heard about it, and started...
  7. D

    Als care within the va

    I am very concerned about the type of care our veterans are receiving from the Department of Veterans Affairs (VA), and the lack of clear guidance and policy on the most effective ALS care protocols throughout the VA. Instead of being seen by an accredited multi-discipline care team most...
  8. Poet Chistopher Robin

    How I found out I had this terrible disease

    It started with me as a teen back in the 1970’s I broke my right index knuckle several times over during the years. Each winter my right hand was no good in the cold weather the finger was in effect dead in 2009 the knuckle got so bad that I could no longer even write or sign my name and had...
  9. D

    Layman's Interpretation, please

    I ask of your forgiveness ahead of time if I am being overly apprehensive and cause any disrespect. We were told in a former post that some on here are great at the reading of EMG, NCV and SFEMG and translating them into layman's terms. I humbly and nervously am asking that of you, please...
  10. D

    EMG/NCS Findings -- Is this ALS?

    Hi Everyone, First off, thanks for your endless patience with those of us who are nervous about our symptoms. I hope you have time to answer my question. I've been a member of ALS Forums for over two years. My brother died of ALS in August 2011. He told me that he had intense muscle cramps...
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