increase

  1. S

    Silly Question

    As a I type this question I feel kind of foolish because this is probably a dumb question. Anyway, is it possible to have symptoms in your limbs and the bulbar region at the same time. I've been dealing with issues in my hands and arms since early summer. In the last week or two I have noticed...
  2. P

    creatine and triasmtiv (ck-357)

    creatine is a supplement frequently tested for als. I have been taking it since day one. I did phase II, part a of ck-357. was very successful for me, but thinking back I was doing 10-15 grams of creatine everyday. maybe it was the combination of the two that provided the increase. that was...
  3. AKmom

    Abdominal muscle cramps

    For years I have had occasional spasms in my abdominal area that have been complicated with severe pain of adhesions from multiple surgeries. But for about a month now, I have been having the muscles of my abdomen all the sudden stiffen up to the point that its like I am pregnant and in labor...
  4. Q

    Rilutek cost

    Just got back from picking up my Rilutek and the cost has gone up again. Now $2,035 for one month supply of 60 tablets. So in the medicare gap my share of the price is $1,008. Is anyone incredulous about this increase. Last year it also increased from about $900 to $1,129 if I remember...
  5. E

    support the actions that the MDA and ALSA cited in their letter below.

    I believe we should make 50 copies of this And ask attendees to write in their own words the urgency regarding FDA action on the highlighted 3 important Underlined sections. They can then place them in the hands of the FDA representatives at the Meeting, and extra copies for presentation during...
  6. AKjo

    Energetic young men plan long distance bike ride to promote ALS awareness

    My son, son-in-law, and their friend are going to ride their bicycles from Portland, Oregon to Portland, Maine to increase ALS awareness. They have just started a blog that will chronicle with narrative and photos their tour, and keep us updated on their progress. The blog is linked to the...
  7. A

    goin through the motions of diagnosis

    hi everyone,my name is chris,,,,6 months ago I started noticing that i couldnt whistle anymore,I then noticed that when i was talking my palate would sort of squash my words in my mouth,i then began slurring quite badly,sounding drunk.My mouth became very aggrivated,i would wake through the...
  8. Cricket

    Hello from new member

    Hi everybody I just joined the forum a couple of days ago. I have been diagnosed with ALS almost 2 yrs ago. I use a pwc to zoom around and always bug the techs to increase its horsepwr or to get it to shift speeds (like a motorbike) without having to stop before each time. I am 41 and have 3...
  9. W

    BFS to ALS?

    I appreciate the time you spend answering questions on this forum. Since November I have been experiencing wide spread twitching that started seemingly innocently in my eye and progressed everywhere. After reading many of the posts, I took the advice of many and went to a Nuero last week. He...
  10. F

    Swaying towards ALS...?

    May I start of by saying how incredible you all are who support & give advice to each other even though you are all going through an extremely challengeable time. I pray that they find a cure sooner than later as ALS is such a devastating disease to have. May you all who have been diagnosed...
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