increase

  1. MaxEidswick

    Promised eulogy

    I promised a eulogy. But found that sharing Elaine’s life is what we all have been doing. Going back, reading all her posts and thread contributions was a renewed education in how I would like to be. Not just thought of, but really ‘be’. Here, instead of a eulogy, I share some of Elaine’s...
  2. W

    spasticity sucks

    I know this is nothing new to you guys, but I just am so frustrated with it lately. My legs, especially my right leg are just so stiff and sore all the time. Sometimes my feet hurt so bad. Especially the bottom, just feels like the whole thing is cramped up. Any time I try to stretch my arm...
  3. T

    Amyltrptiline

    Or however its spelled! Anyhoo, just wondering what does you all are taking and how long it took for effects to be seen? Hubby started just over a week ago on 10 mg, with instructions from Doc to increase up to 50 mg as needed. Need it to start working! Wondering if theres a standard dose...
  4. L

    3 years since PLS diagnosis

    Here’s where I am at 3 years with my PLS: • 2009 o Started in left leg, then right (foot drag, falls) • 2011 – June – Diagnosed • 2012 o Started using a cane o Hands next –weakness and fist clenching at night – wear braces for this o Emotional lability (laughing and crying episodes) o...
  5. Barbie

    Doctor visit on Friday

    Need some advice on doctors for my Pals. He doesn't' go to the ALS clinic anymore. It is in Tampa and we are in Orlando so that is 1 1/2 hours away. and when we do go, it seems like just a big waste of time. they cant do the breathing test on him because he can't get his mouth closed on the...
  6. M

    face mask for non invasive ventilatiom

    Hi, My husband uses the Trilogy as non invasive ventilation ( not bipap). It has made a huge difference by helping to increase lung capacity. However, because the volume of air has drastically increased, he is having trouble with the seal on the mask. Air is escaping,:confused: which lessens the...
  7. C

    Questions on ALS symptoms

    I've read all of the stickies and many threads and am so impressed at the level of knowledge and support. I thank all the answerers for their time and insights. I have a 40% grip strength reduction on the left and clinical weakness 4+/5 in my left bicep on exam, duration 5 weeks (weakness could...
  8. A

    EMG/twitching questions

    So, I'm reading here for almost a year now. Twitching is still here every day, constantly. Increase of saliva too. No real speaking issues, but I do notice some troubles with the 's' and the "t". EMG in january was normal. People here say: normal EMG is no ALS. But why is it that a lot of...
  9. C

    college student with small history, feel like its no getting better

    Good Evening everyone! ive been trying to avoid joining this site but my progressive symptoms over the past year have had me concered. it all started with sudden faigue, an increase in floaters suddenly, a "buzz" feeling inmy head that was on and off, and episodes of sleep where i would be...
  10. M

    comments much appreciated very scared

    hi everyone im new here but have been reading for a while . I am 48 year old male .it started about a year ago noticed my calves slightly twitching and noticed some pains here and there throughout my body.the worrisome part was my twitching began to really get bad in my calves and I was having...
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