improvement

  1. L

    Update and continued concern

    Hello again Firstly I apologise for posting again but it has been several months since I last posted, the thread now being closed, and my symptoms continue to progress and leave me extremely worried. Since my last post I have had an MRI scan of my lower back which did not show any current nerve...
  2. O

    Does Neudexta help speech?

    I ran across an article recently that said Neudexta may improve swallowing, excess salivation, and even speech. Has anyone taken Neudexta and experienced improvement in speech? I did a search and found one post that mentioned alleviation of drooling and improved swallowing but did not...
  3. P

    Boondoggle

    Is Radicava turning out to be one of the biggest FDA Boondoggles ever? I am being hammered with phone calls and emails to sign up for this drug. My doctor believes there is not enough information yet. It seems strange to me the approval and distribution of this drug is based on an Asian study of...
  4. BlsdMama

    Can we discuss reflexes?

    I have a working diagnosis of PLS. I’m aware of the statistics. So far two clean EMGs. Had a Neurology appointment at my research hospital, not Mayo. Mayo has dx’d PLS as well but because a glycine receptor antibody was found a trial of IVIG for Stiff Persons was ordered. I’m about seven...
  5. J

    Another "Bulbar ALS?" Thread

    Dear all, Thanks to a wonderfully useful website to those who are affected by this horrendous disease. I do wonder if anyone who has been diagnosed with ALS has had the following course of events which I'm currently going through. My current situation is as follows: I am a 29 year old male who...
  6. M

    Anyone else with B.A.D. diagnosis?

    new to the forum so please forgive messy typing, etc. I began having fasciculations in left arm in Jan 2016. father had Parkinsons and I've had restless leg syndrome for 20 years and been on parkinsons meds so I assumed that was cause. Pk was ruled out but had emg ncv in july 2016 and neuro...
  7. H

    Seeking Guidance (Again)

    I had sought guidance in June and received helpful feedback. I have an update and would appreciate any thoughts. I am a 65-year-old male. In mid-2016, I started to have swallowing issues with food occasionally stuck in my throat. I also started to have intermittent issues where my speech...
  8. Ed340hp

    Tirasimptev continues VIGOR ALS

    I'll get to the update. The VitalityALS phase three trial ended or all participants and trials in October. All reports and data were due for submission. They now think it will be March before publication. The goal of continued good breathing numbers is holding steady. My FVC and SVC numbers...
  9. C

    Very scared, symptoms getting worse. Please some advice

    Hi guys To begin with - sorry for grammar. English isnt my first language. Ive been reading on this forum last month and Im truly sorry for you who must live with this absolutely terrible deseace. My story is quite long and I do understand if you thinks that this is just another twither but I...
  10. A

    Does this sound like ALS? Very confused and concerned.

    Hi everyone. I'm a 20 year old female and have been having some weird symptoms lately. So about 2.5 weeks ago I started feeling muscle twitches around my body. I didn't think much of it at the time because I do occasionally experience muscle twitching after workouts, etc. However the next time...
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