improvement

  1. J

    Acupunture as treatment for ALS

    Hi, I was wondering if anyone with ALS has tried acupunture as treatment for ALS and if you have, have you seen any sort of improvement? We are thinking of this for my mother if that is a possible treatment that would help her any bit. Thanks, Kim
  2. rocmg

    First 'Neuroprotective' Gene In Patients With Amyotrophic Lateral Sclerosis Isolated

    ScienceDaily (May 11, 2009) — A genetic variant that substantially improves survival of individuals with amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig's disease, has been indentified by a consortium of researchers led by John Landers, PhD, Associate Professor of Neurology and...
  3. R

    Where to from here?

    I have noticed there are a few people posting now that seem to have similar issues to what I am having. Does anyone have ideas for any types of specialists that might make sense to pursue - rheumatology, infectious disease, back to neuros, etc. - given the following? I have been told by 5...
  4. O

    Husband newly diagnosed and we have questions

    My husband is 43 and has pretty much been diagnosed with PLS. They are doing a spinal tap as a final step to ruling everything else out, but the neuro is pretty confident that it is PLS. I have a few questions that I was hoping someone could help us with. 1. Fatigue-He has extreme fatigue...
  5. A

    What is your experience with your ALSA chapter?

    I am just curious to see what everyone's experience is in getting support from their ALSA chapter. I know for us, while we had a kind and compassionate case worker, there was very limited benefit from the chapter to us on a personal level. I was wondering if everyone might want to tell of their...
  6. sdsyd

    hi friends

    Sorry I haven't been around on the boards much, I miss hearing updates on everyone and your friendship. Things have been crazy around here. I did have my spinal tap and it was negative for any antibodies. Could have went on with a sural nerve biopsy, etc. So- basically what the word on the...
  7. W

    Health anxiety, hypochondria and medication

    I am a 27 years old male, and I have been suffering from health anxiety for most of my life. I've recently found relief from it, and I'm writing this in the hopes that more people like me will seek out treatment: My most recent hypochondria attack came on after developing random twitching...
  8. lydia

    doctor visit today

    So I saw my GP today and shared with him how the hamstring tightness/stiffness/soreness is so improved and asked if he thought it could be a result of the supplements. He said sure! He adjusted my dosages a bit. So I am optimistic. Since this is the "treatment" for a mitochondrial disorder and...
  9. lydia

    question for Zaphoon, Olly....

    (Zaphoon, Olly, I know you have dealt with spasticity.....) To remind you all, my leg muscles, particularly the hamstrings, have been so tight and stiff and sore...It has been my primary complaint. The most debilitating of all my so-called issues. Impacting balance, stamina, and so on...I...
  10. J

    question about baclofen

    I have tried and tried to find a Multiple Sclerosis support forum but have yet to find one. NOTHING compares to this website!~! And absolutely nothing compares to you all as a support group! I was told I have to take the baclofen around the clock to get results and so I've been doing so and I...
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