1. M

    Neurologist follow up

    Going in on Friday for a follow up with my neurologist because I have finished physical therapy with no improvement. I was previously diagnosed with cramp fasiculation syndrome but it doesn’t appear to be the case because I have weakness and atrophy noted by my physical therapist... which at the...
  2. J

    Brainstorm Nurown 'Right to Try' participant shares progress

    As some of you may know, Brainstorm granted one PALS free access to NurOwn as a 'thank you' for the work he did on Right to Try. He is not in a trial but is being given the course separately. His update is on Facebook -- matt.bellinski.7 Mod note -- not linking directly due to fundraising...
  3. D

    Baclofen - should I expect any issues?

    Clinic had me start Baclofen today for leg numbness and stiffness. What do I need to watch for? Have you experienced improvement with this drug?
  4. A

    finally a full face mask I like

    I've always preferred the nose pillows, but my poor nostrils are red and sore. All the full masks I've tried are claustrophobic, leak, and I can't use my glasses. The new mask is respironivcs dreamwear full face mask and it is huge improvement for me! I think it's new product.
  5. P

    Concerned about ALS

    Good Afternoon, I have spent plenty of time reading on this board and trying to find answers to all the questions that I have. A lot of my questions have been answered, but I still have a few doubts. I am hoping that you guys can help me answer some of those. I have been experiencing symptoms...
  6. S

    Symptoms I have observed

    Hi, I have read the stickies regarding ALS and I admire the commitment of everyone who takes the time to answer all the questions. I am 63 years old male having retired from work last March and my general health is good, I have haemochromatosis (iron overload) which is well managed by my...
  7. G

    Bulbar issues, fatigue

    Hello! First of all, I am really grateful for all the help of you, PALS and CALS, provide to us that are still lost in our medical conditions, and I respect you immensely for that. In August, my first symptomes occured. After a spasm that woke me up, my middle finger on my right foot started...
  8. W

    Laryngospasm and atrophy

    First of all, I'd like to apologize for the post. I've tried to avoid it until now, but my worries are totally draining the focus of my life and I feel you can help me. I'm a man, I'm 28 years old and I live in Spain. Just over two months ago I started having a cough crisis that did not end at...
  9. Trippy

    Nuedexta as needed?

    Does anyone take this drug as needed, for example when planning to be around people, etc. or take it on a different schedule than manufacturer recommendations? I did a search but couldn’t find any information. I started a half dose (one pill) last week and within 24 hours noticed a definite...
  10. V

    No hope...definately bulbar ALS

    Hello, First of all thank you who will read my story. It is hard time for me now and i thought over of other possibilities, that could affect my health, but only bulbar ALS pops up in my mind. Everything started on march. I had a flu type virus for about two weeks and my left face side was...