immunoglobulin

  1. L

    Peak cough flow variation in ALS

    Hi guys, I posted a few times already here about my mother who has a possible diagnosis of ALS, but seronegative Myasthenia Gravis is also still being considered, but it cannot explain the hyperreflexia of her legs. So they think ALS and MG or maybe cervical radiculopathy. She has atypical...
  2. L

    Reversible breathing issues with IVIG in ALS and MG

    Dear PALS, I've had an earlier thread regarding my mother, who's diagnosis is still uncertain. Both Laurie and Karen were very helpful. A short intro: My mother is a very complex case and has shortness of breath, orthopnea, loss of strength in upper arms and some atrophy of the deltoid...
  3. HeatherFeather

    IVIG and multifocal motor neuropathy

    Morning everybody xoxo Hubbs went to the Montreal Neurological Institute yesterday. He had another EMG and his doctor is stumped at his progression. He says that Ron's progressing faster than he expected. So much so that he is sending him for intravenous immunoglobulin therapy (IVIG) thinking...
  4. D

    New diagnosis

    I noticed a weak left hand in fall 2013. I saw a neurologist at UT Medicine San Antonio in November and was diagnosed with multifocal motor neuropathy. I started iv immunoglobulin in February. I continued with ivig until June. It was not working. My neurologist said she was leaning toward a...
  5. W

    Is intravenous immunoglobulin (ivig) helpfull ?

    Hello All I'm Winata. Maybe you wouldn't understand completely about what I say because of my bad English. This forum have been my source of information because my father had ALS and I live in Indonesia. A country which still have little information about ALS, many of neurologist didn't know...
  6. BethU

    Reversing Atrophy?

    Hi ... I have no idea what I'm talking about on anything medical, but I found the following article on the Wiley InterScience website, quoting an article from the journal "Muscle & Nerve," Vol 36, Issue 3, pp 304-399, 12 Feb 2007. I know that my neuros are right and I have ALS, but because of...
  7. M

    Recent patent; treatment

    Has anyone seen or tried this...? Sorry for the extensive length. Hope I didn't break any rules by copying/pasting it on here. http://www.wipo.int/pctdb/en/wo.jsp?WO=2008021970 Thanks. Mike TREATMENT OF MOTOR NEURON DISEASE, INCLUDING CERTAIN NEUROLOGICAL DISORDERS, MOTOR NEUROPATHIES...
  8. L

    Not ALS- rather some form of MNN or MND?

    Hi everyone- so I have some questions. My father was diagnosed in June with possible ALS (lower onset), but the neuro agreed with monitoring his progression that it would be useful to obtain a second higher opinion. So off we went to London, Ontario, and the chief researcher for ALS in Canada...
  9. J

    Paralyzed legs now arms since new baby came

    My daughter has ALS, since they can't find anything else to call it. She had dropfoot for 6 months, and nothing showed in many tests by about 5 neuros, who she had to PUSH to do anything. Everyone was "perplexed", and said come back on a couple of months if no better. SHe got pregnant, and...
  10. V

    Got a DX

    I saw my Neurologist on Thursday, and I had NVC and EMG tests, the last time he did those tests was 4 months ago. They came out normal (which really surprised me), but my blood work came back with a high reading of GAD-56 AutoAntibody. The normal range is 0.0-1.5 U/mL, but mine was 10.3U/mL. The...
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