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I can't believe family sometimes. One of his daughters got very strange just hours before he died saying he had told her a bunch of funeral arrangements he had never told me, including burial with his first wife ashes inside his coffin, not cremation! There were a few awful things from her...

Dear Fellow CALS and PALS This is going to be difficult to write - to sort through my thoughts and fears. And too wordy. My PAL had a neurological F/U (my shorthand for .... no, not that .... follow-up) appt a few days ago. He was not due until August but something new developed and I wanted to...

Hello everyone! I am new to forum and would like to share my story and hopefully gain some insight . My medical history is quite complicated and I will start by saying that I have had neurological issues since I was a teen. Started with seizure like episodes and then progressed to balance and...

Hello all, My father (Mike) was diagnosed with ALS and FTD on January 9th, 2014. Brief history: My father was making very poor decisions for the past few years which just didn't add up. In the beginning of June 2013 he began slurring his speech. We thought he had a stroke and took him to the...

Here you go Max - why am I Tillie? When I first joined the forum here I was extremely concerned that I may say stuff here and that Chris may read it and know it was me and take offence. He suffered FTD as well as ALS and was very paranoid, particularly towards me, and had no empathy for me at...

One of our home care staff sent this to me just recently. Chris gained his wings 4 weeks before she managed to write this. It has reminded me that even though, at the time, we are just bumbling along through what seems a nightmare, we can turn anything into a positive influence for others...

8 months ago i started feeling pain in my left arm. Thought it was CTS because my hand would go numb at night. Went to the doctor he told me tendinitis. I took some meds but they didn't work. Started getting twitching in my ring finger which spread to the rest of my fingers. Pain and aching...

My husband is currently undergoing testing for issues he is experiencing. He was immediately referred from a gp to a neurologist and we are now waiting for a diagnosis. The testing started in February '14 and the doctors are doing additional testing every two weeks to check for progression. I...

The DIHALS forum has been hijacked by a small cohort of posters whom have rendered the forum useless. The pattern is that a new poster is immediately attacked and told they have anxiety or some nonsense about having only perceived weakness, and then the rest of the gang jumps in to berate the...

Everyone - Thank you for your thoughtful responses in my prior thread. I saw my neurologist earlier in the week. I learned the following things: 1) What I saw as atrophy in my left leg was not present. To use this doctor's phrasing, "Your left leg is not smaller; rather your right leg is...