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  1. D

    Wholeheartedly Believe It's Bulbar Onset

    Hi All, I sincerely apologise for coming on here again. (Last here in 2012). I just wanted to put my thoughts down into words due to the worry it is causing. Firstly I’m a 34 year old male who is very overweight and leads a very sedentary lifestyle I have had a large variety of symptoms which...
  2. P

    My Experience with Twitching

    Mid 30's male, grandmother diagnosed at 73. Began twitching in arm in early December, went away for a few weeks, came back in late December in left calf and r. arm, and felt like it was spreading each week: right calf, thighs, neck etc.. I twitch somewhere in my body every few seconds, for...
  3. P

    Waiting and worrying

    I'll try to keep this as succinct as possible. I have been experiencing a variety of symptoms for several months. Symptoms have included; shortness of breath, fatigue, tripping/falling and most recently atrophy and weakness in my left leg. I have been evaluated by a pulmonologist...
  4. N

    Haven't been here since 2011 and now I am scared. Triggered again.

    So I am back after a brief hospital stay which caused whatever I have to flair up again. It all began in 2011 *******-------Feb 4-5th 2019-----------********* So went back to same neuro with exasperated symptoms after a brief stay in the hospital for severe constipation. After the hospital...
  5. W

    Symptoms bulbar and left arm

    Hello! My heart goes out to anyone with this horrifying disease. Nobody deserves it. I have read the sticky in this forum and have been unsure wether I should post, but my anxiety about this disease is severe. I figure I should seek the advice of people who actually have this disease and...
  6. S

    No diagnosis - Nervous after 6 months

    I’m concerned about my symptoms I’ve been facing them for just under 6 months. Let me start out by saying that my life is very stressful. I manage about 500 people all over the world. The ups and downs of corporate politics are very impactful and my stress level in the last 6 months has been...
  7. P

    Interabled relationship advice

    Hello everyone. I am in a relationship with a beautiful man who happens to have als. We met when I began helping him as his caregiver. We have so much in common and just hit it off immediately. I know he is ill but I still see HIM the man and not the illness. I watched a documentary where the...
  8. B

    Worried since 3 months

    My problems started all 3 months ago. Everything was fine before. After some extensive jogging, my calfs felt stiff. Ok, thats maybe normal, i thought. But it didn`t disappear. Also, i mentioned twitching on both sides. After doing some more sports in the next two weeks, twitching was more...
  9. S

    21F, muscle atrophy, weakness, pain

    Hello all. Just wanted to thank anyone for taking the time to read to and/or respond to my post. In June, 4 months ago, my shoulder started to hurt. I had to quit my job because of the pain. I was diagnosed with shoulder impingement, and got several cortisone shots, attended physical therapy...
  10. M

    Restless at Night

    My PALS was diagnosed in May 2017. He has ALS/FTD, feeding tube placed in May with continuous feed, Bipap starting in May at night, is all upper body and can still walk but will assistance. When he received the bipap he immediately adapted to it and slept twelve hours the first night. In fact...
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