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My mam was diagnosed oct'07, she has progressed fast, her hands are really weak and not much use, but the main difficulty is on the breathing. She uses the bi-pap during the day and sleeps with it on during the day, she will not use it at night as she thinks she may suffocate or die somehow on...

Very first post will hopefully find way around site, eventually. I have gone from back ache to stiffening and cranping in right knee to right hand, to right arm and shoulder. I have been putting this down to old age, only 46 but then came the twitching, here and there, mainly hand but...

Quick recap: December: Started Having weird sensations in left hand and foot, numbness/tingling mostly March: Went to neuro, did emg/nc, other than brisk reflexes everything fine June: twitching starts in left hand, almost constantly, some twitching in left foot and calve off and on July: Went...

I received this from the Les Turner ALS Foundation today. I not only contacted Dick Durbin, my Senator that voted for this to thank him, but also contacted Barrack Obama who did not vote. I sent him a picture of my family & invited him to spend a few hours with my family. I told him that if...

Hi! I am fairly certain I have ALS and just need to talk to someone who may have/may be going through the same things because I FEEL this, but no one can SEE it. I am having internal tremors 24 hours a day. My entire body shakes inside, but you can't see it when you look at me. Also, my...

VA Issue Team Vice-Chair Scheduled to Testify to Congress Call to Action for All Veterans with ALS We are excited to announce that Jeff Faull, a veteran with ALS from our Greater Philadelphia Chapter and the Vice-Chair of The ALS Association's VA Issue Team, is scheduled to testify before the...

Hi everyone, I've posted a thread before about my symptoms and wanted to ask for more advice. My heart goes out to anybody affected by ALS. I'm male and 22 years old. Recently I've been very concerned with the loss of muscle in the area between my thumb and index finger in my left hand. It's...

Hello to my beloved friends, I honestly don't know where I would be without you... "Scared and Confused" was getting just way too long, so I thought it would be best to start a new thread, I hope and pray you will find this one... Yesterday my Dr's PA (Physician's Assistant) called me...

Hi all,my husband was put on artivan last week for his breathing which is very shallow.It looked to me like he was suffering and he agreed.He often has trouble expressing himself and his whole life i think he was encouraged to ignore pain,not by me by his familly.....anyway this morning he could...

Sorry for the "out of curiosity" question, but as some of you may know I have BFS and am interested in the topic of fasciculations in general. Feel free to ignore me. :-D When someone with BFS catches a cold, their twitches increase dramatically. There's just something about viruses that, I...