ideas

  1. F

    Problems "getting speech started" - how to help?

    Hi I'm an SLP and am trying to help a patient with ALS. He is having increasing difficulty getting his words started. It is almost like a stuttering block. He knows what he is trying to say - it isn't a word finding problem. I'm sure it is some sort of motor corodination/control issue. I...
  2. M

    Things have got worse!

    Hi everyone, I'm mike, 26 year old male. Posted once previous. I recently went and had an NCS and an EMG test done on my right leg and right arm. The NCS didn't pick up anything sinister (from the burning I'm getting) and the EMG didn't even pick up anything either (from the twitches I'm...
  3. A

    Strange symptoms in the last few months

    Hi guys, obviously I'm new here. I'll cut to the chase. I have been experiencing pretty strange neurological symptoms the last couple months and I was curious if anyone here could give me any guidance. I have pretty serious anxiety so be aware that I may be over reacting and exaggerating my...
  4. B

    Finger Sweating

    I have a problem with sweating between my fingers. they are hard to separate with out the help of the other hand. any ideas how to keep dry ?
  5. L

    Cough relief -- Any suggestions.

    So back in early June, I developed some sort of dry cough. It would come on suddenly with a tickly feeling in my throat. The end result would be minutes upon minutes of coughing. Followed by a relief for an hour or so. The same cough wakes me up at night. Mid-June I got a pneumonia. At the...
  6. T

    Getting in and out of bed and rolling ankle

    Hello Getting into bed is becoming an issue. Does anyone have a height adjustable bed or any ideas how to make it easier? If my bed is to high i cant get in and if its too low i cant get out. My ankle has started to roll out each time i step on it so standing up is becoming hard. Anyone else...
  7. Q

    Tips for Hosting a Friend with ALS

    A friend with ALS is traveling cross-country to visit for a few weeks. She is using a wheelchair and a feeding tube. But she is very modest when I ask what I can get ready in our home to help make things easier. I was hoping some in this forum may have some good ideas or tips. Other than a...
  8. V

    ALS OR NOT hmmmmmm

    Hi everybody I have had symptoms for 3 years now and have had many different diagnosis so far. It's enough to drive you crazy lol But I'm a positive kind of gal so I'm still looking for answers I have numbness in left arm and leg also muscle spasms and pain. I am becoming very forgetful and...
  9. Nuts

    How would you improve your PWC?

    I've struggled with where to post this, so please move it if there's a better place, Nikki. I've been working with a design engineer from Invacare who is looking for feedback from PALS and CALS on how we use the chairs and what limitations we still face in order to assist him with the design...
  10. S

    Need any ideas gadgets etc

    Hi, my mom has had ALS for a year now. She can no longer use her hands and her legs are days away from being unable to stand even to get up off the chair. Unfortunately not getting much help here in CA from the ALS clinic so feel all alone trying to help her. Need any ideas on things ALS...
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