ideas

  1. U

    My mum is it ALS?

    Hi, really looking for ideas about what is going on with my mum. It’s along and complicated story so I’ll try to keep it brief! She’s never been the most healthy of adults. She had a heart attack in her late 40’s, drank too much alcohol and smoked and got little in the way of exercise. She...
  2. M

    EyeTracking to trigger fishing reel

    Hello all my name is charles howell and i have a friend with als. I am working on triggering electric reel with small app. looking for suggestions for other uses, ideas etc... thanks! Charles
  3. swalker

    Time for a new wheelchair

    As many of you know, I have 4 wheelchairs, one of which has been funded by private insurance. The other three we bought used for particular purposes. The wheelchair funded by insurance is a Permobil C500s VS, which was ordered 4 years ago this month and arrived in January of 2015. It has over...
  4. A

    excessive yawn and lip biting

    as if I need one more problem! the yawns which are really spasms come all the time now when I'm awake. My mouth opens wide and then violently snaps shut. Mostly the top teeth smash bottom lip which is swollen and nearly bloody. Other times my teeth hit and I'm surprised it hasn't broken a...
  5. H

    Symptoms and questions

    Hi All, what a great site and good support, I've read a lot already. late last spring I started to notice tightness in my forearms, for no explicable reason. Also had a few calf cramps but didnt think much of it as I've had those before. Early august I had a period of frequent twitching of...
  6. jethro

    Cryopreservation

    desperate, just like everyone on this forum, i'm trying, trying... bureaucracy, science, time... everything is against us. what knocked me down is one scientist's sentence: "it is terrible to see patients dying faster then mice". time is crucial thing. my body is a weaker on a daily basis. so...
  7. J

    19 years old, is this ALS?

    Hi, I am 19 years old, I do have health anxiety, and I have been pretty stressed for the past 3 months. The problem is, about 4 weeks ago, I started twitching in my right shoulder, it came out of nowhere while using the computer. Lasted for a few minutes and vas visible, not in a pattern...
  8. H

    In the process of testing

    Hello! I am having neurological issues, which I believe stem from a fall I had down the stairs. However, one big issue I have had prior to the fall was waking up with stiff legs. I am 52 and walking like an old lady. That had gone on for about 1 1/2 years or so prior to the fall. A couple...
  9. G

    Permobil M300 PWC too bumpy

    I received a Permobil M300 loaner from my local ALS Society a few months ago. I've been having fun with getting out and about, especially now that the weather is nice. But one problem is that the ride is really bumpy. For example, when I go over sidewalk cracks it feels like I'm really hitting...
  10. M

    ALS diagnosis..or not

    Hello all.thanx for accepting me. This is a long sorted story. My husband was diagnosed over 7 years ago,in the meantime he was diagnosed with hashimotos disease as well,although it was neglected for over 20 years. He started out with a sore shoulder on his right,then in mobility. Went to a...
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