ideas

  1. gooseberry

    tech help needed permobil c400

    An encounter with the chair happened today which resulted in the control panel being in an upward position and not the relaxed neutral position it was installed in. Anyone got ideas on how to change the tilt? I can't find anything in the users or technical manual. I don't see a button...
  2. B

    Trouble with staying in bed

    This may seem obvious. But, my Mother has bulbar ALS. Until recently she has been able to get up in the night to go to the bathroom. She is getting up 6-7 times a night despite very limited liquid intake through her feeding tube. Recently, she gets up and falls. We have tried putting a bell for...
  3. A

    What is a relevant symptom and what is not?

    I am a 59 year old, caucasian woman. I am awaiting an appointment with an ALS specialist. Thinking back, I had weakness in my left arm as early as Jan. 2014. In May 2014, I had an event that included dizziness (felt like I was banking to the right all the time) and, after a week, tingling in...
  4. gooseberry

    prepared food that is easy to open

    Steve has lost a lot of ability with his hands. When he does use them they cramp terribly. I have gotten him burritos and frozen dinners he likes, left him sandwiches etc because he does get up a couple hours before I get home and wants food. These packages are getting too difficult to open...
  5. H

    New here and hoping for some good suggestions

    I live in Canada and with the winter coming I am having a hard time with staying warm in bed without being trapped. I'm waking up during the night and I can't move the blankets due to the weight and my lack of strength. I bought a silk blanket but it is not warm enough. I thought about maybe a...
  6. P

    PALS refusing outside caregiver - don't know what to do

    Hi everyone. I have exams coming up and will need to be away from the home from very early in the morning until afternoon. In a few months time I will also have to start working three full days a week and attending meetings on the fourth day. As a result I spoke to my husband this morning...
  7. L

    Left Side of Body Issues

    Very concerned and would love any feedback/thoughts regardless of what they are. About a month ago I felt a lack of sensation in my left arm. Not numbness or tingling but just that it felt different. Almost like I had just been to a work out and it was exhausted from my elbow to my hand. That...
  8. 4tloml

    EZ Lift or other portable wheelchairs

    There's an old (closed) thread that mentions the EZ Lift electric wheelchair and another, the Zipper, but I'm wondering if anyone has used a portable power wheelchair and what their experience has been. The EZ Lift with the joy stick now has a deluxe model with a 5-position adjustable back and...
  9. F

    Problems "getting speech started" - how to help?

    Hi I'm an SLP and am trying to help a patient with ALS. He is having increasing difficulty getting his words started. It is almost like a stuttering block. He knows what he is trying to say - it isn't a word finding problem. I'm sure it is some sort of motor corodination/control issue. I...
  10. M

    Things have got worse!

    Hi everyone, I'm mike, 26 year old male. Posted once previous. I recently went and had an NCS and an EMG test done on my right leg and right arm. The NCS didn't pick up anything sinister (from the burning I'm getting) and the EMG didn't even pick up anything either (from the twitches I'm...
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