ideas

  1. F

    Excess Saliva is a handicap for me...

    Hi guys, I'm not feeling real great today, so I probably shouldn't be trying to write this now. But it's been an ongoing problem and I at least wanted to begin to Get it out there. I have been going thru a 210 count box of Kleenex every day for Months due to the Excess Saliva that collects in...
  2. M

    Fascics and Numbness

    Hello, This is my first post. I've read so much on this forum over the past couple of weeks, and I am impressed by the comradery, love, and professionalism here. I worry about my symptoms and am going in to see my PCP next Monday about my concern. Here's a bit of my history: 43 year old male...
  3. L

    Gift ideas for dad (who has ALS)

    Hello lovely people, I'm looking forward to flying back to the UK to spend Christmas with my family. I am really stuck about what to get dad for a gift. Dad relies 100% on a feeding tube and can't get around on his own any more. He has a little iPad to type into but next year is getting a...
  4. Dave Kerwood

    My wife has been diagnosed with MND-ALS + FTD

    Good mornng This is my first post here, will keep it short and to the point. My name is Dave (52) December 23 2014 my wife (Julie) (68) was diagnosed with Frontotemporal Dementia and Motor Neurone Disease (ALS). Devastating News. I have been a full time carer from the start as I were self...
  5. G

    Me too

    Hello everyone, About 6 months ago I came upon this site and was blown away by the outpouring of warmth, friendliness, support and wealth of information. You are all wonderful, sharing your stories and experiences for scared 'kids' like me! Thanks to the founders and contributors for this...
  6. M

    Sleep issues

    Re: Terminating paid subscription? Thanks, Jim. Since you've mentioned it: I have had a rather hellish time lately with insomnia and night-time restlessness. Doing a bit better with the help of 2 "Bed Cane" gizmos, 2 Lyrica caps and 0.5ml of hemp oil, but would not mind doing without the...
  7. K

    iPad Text to Speech app

    Hello all, I have just submitted a text to speech app for the iPad to the app store. The app is called MiMic and is a free app that will allow people with speech difficulties to communicate easily with family and friends. You can use the built in words or create your own custom screens of words...
  8. B

    Almost 4 months of symptoms..each day feels worse

    Hello and thank you for taking the time to read and hopefully answer this post. Mid July I was walking and my foot felt weird. When I got back to my car I realized my second toe wouldn't bend. It was locked straight. I couldn't even move it with my hands. I also noticed twitching in the...
  9. S

    Worried after gardasil

    27 male: Been reading all your forum topics for awhile since I started having issues (August 2015). I have a brain injury so sorry if I explain in a mess. To start * got gardasil 1 shot gained a positive ANA and made my fibromalgia get worse *now am near skin and bone no muscle in forearm (have...
  10. C

    Sleep solutions

    My husband has Als and was diagnosed 3 years ago. His arms are not working all and every night I need to help him turn over. He legs are still working. This is becoming tiring and wondering if anyone has any tips. My husband will not take anything to help him sleep. He wakes me at least 5...
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