ice

  1. K

    Twitching characteristics

    Does Twitching in ALS stop on moving the muscle involved or it happens irrespective of the state muscle is in i.e in motion or in rest/relaxed position ? Also, do you retain the sensation when your muscle twitches during the course of the disease or your body loses the sensation to feel the...
  2. N

    Hello

    Hello everyone, I wanted to introduce myself ... My name is Natascha, I am 41 years old and mother of two children. In 12/2000 ALS was diagnosed. Since the course at I am very slow, I am the second opinion in 04/2018 in another ALS special clinic. Unfortunately, the ALS was also confirmed there...
  3. L

    The Ferrari

    A hip young man goes out and buys the best car available; a brand new Ferrari 550. It is also the most expensive car in the world, and it cost him $500,000. He takes it out for a spin and stops for a red light. An old man pulls up next to him on a moped. The old man looks over at the...
  4. KimT

    Something Positive

    After looking back on some of the posts I've started, I thought it would be nice to share something positive. I made my doctor a promise that I would start to do things for myself that I enjoy while I still can. Today I got a long, luxurious pedicure and manicure. They lasted over three...
  5. U

    What is going on with me?

    Ok back in november 2015 I inhaled coolant at work and instantly got a pain on the back of my neck and felt like I was going to puke for like 12 hours. Few months later something happened with my brain causing my perception to change and my memory got impaired and my personality slightly...
  6. T

    Muscle atrophy (?)

    Hello! Thank you in advance to anyone who gets back to me. I have muscle twitching mostly in my left leg but also all over my body, pretty normal for me but I just wanted to state it. My left leg on my upper thigh has a dent in it and after doing some research the first article that pulled up...
  7. M

    A delayed introduction

    Hello All, I want to first say thank you for taking the time to read this post. I have avoided posting here for about 1 year but due to changes recently I have decided, still with some hesitation, to post. I was going to write more of my history but I do not want to take up your time any more...
  8. A

    Hand pain, worried maybe atrophy, and some other symtpoms

    Hello, I have not posted in a very long time. I have had muscle twitching since January 2016 and have experienced a lot of fear about my symptoms being ALS. My twitching is not bodywide and the twitches are very strong, larger twitches than they used to be. My biggest concern is that I...
  9. F

    Need help with some symptoms

    Hi everyone! First I wanted to say a huge thank you for these forums and the time you put up with a lot of people with symptoms that are in need of help. That said, now to my condition: My name is Felipe I'm a 30 M who lives in Brazil. I've started with a fasciculation outbreak on my whole...
  10. R

    More Than Our Stories 2019 - A different kind of advocacy conference

    Please consider participating in the second annual www.MoreThanOurStories.org Feb 12-13 in Washington, DC. This is a different kind of advocacy conference. No Powerpoint. No formal presentations. Lots of healthy discussion about government policies that can be improved for people dealing...
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