On Wednesday I attended a Seattle hospital ALS clinic. I was duplicating studies that the VA already does on me but this hospital has a standing IVIG offer which I was hoping to initiate. However my assigned nurologist who made the offer didn't show up so I had to have my concern passed to her...
Dads doctor has been great to work with through all of the difficulities of als. He has challenged one of his partners and both of them will be doing the als ice bucket challenge next Tuesday in the parking lot of there office at noon and posted a short video about it on facebook. They have...
I thought I would post this in the DIHALS section because it is likely to get the most views. I have seen a number of places to donate for ALS support due to the ice bucket challenge and was wondering where you would recommend sending donations? Where can we make sure the funds reach the...
Hi all,
First, I would like to send peace and love out to those of you coping with ALS. Personally, my uncle has been affected with motor neuron disease (currently has aspiration pneumonia). I am happy so many have been made aware of ALS/MND through the "Ice Bucket Challenge," even if not all...
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OK I did it!
The television crew came, the newspaper came.
5 of us did the challenge, and another few people there to support.
http://youtu.be/698-Y18H0sg
Tune in tomorrow! ESPN is doing a feature on ALS patient and former Boston College baseball star Pete Frates. He's the man responsible for the ice bucket challenge going viral, which most of you know.
Should be an interesting feature! And anther major exposure to the general public for ALS...
Cannot begin to describe how stoked I am that this Ice Bucket Challenge started by Pete Frates and his family has taken off. I'm a teenager in high school, and to have my friends, family members, and my football team and coaches accepting the challenge and raising awareness is just awesome.
The...