ice bucket challenge

As you know August has been designated as a time for another Ice Bucket challenge. It would be fabulous if last year was repeated but unlikely However today one of the news stations was preparing theirs which made me happy I also just got an email from the Mass General cure ALS fund. They...

A couple of months after diagnosis Chris met another local PALS through fb. He and his wife came for morning tea to meet us. Chris used the food processor to mix up the last batch of scones he ever made (he was famous for his scones as a cafe owner). He couldn't manage to eat a scone himself...

We just finished a fun, but very tiring, vacation. I always wanted to take my wife to Yosemite, I wish it didn't take ALS to get us there, but it did, finally. My sister and her family joined us, our kids and grandkids for a terrific trip. It can be a challenge to do what each of 17 people want...

Thought this news might be interesting to some. How the money from the ?Ice Bucket Challenge? was actually spent

OK, riddle me this, Batman: how can a hotel be "oversold" when you have a non-refundable deposit on a room with a barrier free shower? Oh, it sounded nice: You've been upgraded to Executive class at our higher-end hotel right around the corner. Oh...let me check...yes, they have a barrier free...

Hey Yall! Really hope I'm not supposed to be here, but I have a few questions. Little over a year ago I started getting twitches all throughout my body. Shortly after, my right leg began to feel funny. At about the same time, my right foot started getting these really fast twitches and cramp...

I'm on another ALS group on the internet and this came to our attention. Here is a picture.... If you google "What is ALS", this is what comes up. They declare it is a MANAGEABLE DISEASE, and treatment can help! Who are these morons at google? There is an option to respond if you feel so...

TIME: Local News Anchor Announces ALS Diagnosis and Retires in Touching Broadcast

I was nominated by the local ALSA chapter to be the subject of a documentary on fundraising and the Ice Bucket Challenge and ALS for the ASU School of Journalism. The students did a great job considering the subject patient could break many cameras and mirrors. I would love to get your comments...

I'm not sure about it and would like to know what you all think about it. Here it is... December 16, 2014 Dear ALS Fighters and Families: There is an opportunity for us to expand WFND’S current therapy program for PALS (People with ALS) and to totally stop ALS progression. Although...