husband

Paul, my husband passed this morning. He was well medicated and his passing was peaceful. He is free and at peace. I thought I had had a lot of anticipatory grief, but find I am unprepared for his passing. His decline seemed so sudden at the end. I never thought we would have Christmas 2022...

Hello. For the past couple months, my husband and I have had some debilitating anxiety over some new sudden symptoms he’s been experiencing. He says that his left calf seems to be twitching a lot from within. Nothing he or I could see outside of the body. He mentions his left leg feels heavier...

I've been struggling lately. I miss my husband so much. I want to remember him as he was before the FTD, and then ALS, took him. Every year I made a calendar with pictures from he and I together. Even last year, I was able to make a calendar with good pictures of the two of us. But I knew this...

My husband passed away peacefully yesterday afternoon. I was with him, holding his hand and telling him how much I love him. Thank you all for your support over the last few years.

Hello, I was wondering if anyone might be able to look at my husband’s EMG report (abnormal) and see if it looks similar to how theirs did before a diagnosis? He has weakness in his left hand and some muscle atrophy. He went to an orthopedic doctor who ordered an EMG (attached) and then after...

Mod: Background from profile post that we did not see until today: I am concerned about my husband. He now weight 142........he can't breathe...he always had asthma but this is different. His muscles are wasting away......his reg doctor and pulmonolgist keep doing tests, but meanwhile he is...

Hello, I’m not sure what to share or how to say this. So here goes. After many tests, my husband will have a second EMG in the near future and the doctors have advised us that we should expect him to be formally diagnosed with ALS at that time. He is already taking Riluzole and discussions about...

My husband has had bulbar onset als since Oct 2020, finally diagnosed 2/2022. He has always been so sweet, now he is mean to me. Is this common? I know he is so depressed. He is going downhill now, and is angry. I cry so much now. I do not know what to do. I just try to be invisible.

Hello, I had previously posted on this site about the Liko sling and portable suction devices. I am sad to say my husband lost his battle with ALS in December. As I mentioned previously it was a fast progression. We are heartbroken and miss him so. He handled his diagnosis and all that he...

I hope I'm not violating any rules here, I am not thinking clearly, as my husband was just diagnosed by a specialist today. He took the news better than I did, I have been crying most of the day. He has bulbar onset, can no longer speak that is understandable, is bothered by drooling, and has...