hsp

  1. M

    Als - pls - hsp

    At 52 I had some left leg stiffness in October 2012. Noticed occasional stumbles and clumsiness prior to this. Suddenly could no longer run on the tennis court in September. Noticed fasciculations and a bit of stiffness in left arm in October as well. Neurologist diagnosed possible ALS on 5th...
    • MISTRO
    • Thread
    • als arm diagnosed diagnosis early emg fasciculations hsp mri muscle muscle weakness neurologist normal emg pain pls possible als shoulder stages stiffness umn weakness
    • Replies: 21
    • Forum: Newly diagnosed
  2. M

    Undiagnosed ....familial als?

    Hi. Ive posted on the PLS forum but have realised i dont seen to fit in there with my symptoms. I have been told that I have a neurological condition after being referred to a neurologist and genetic dept. I have upper motor neuron signs including brisk reflexes and spasticity in my...
    • mummy24
    • Thread
    • als als? claw diagnosed familial familial als fingers genetic hsp mobility mri muscle muscle wasting neurologist paraplegia pls problems scared symptoms testing undiagnosed wanted young
    • Replies: 2
    • Forum: Could this be ALS?
  3. M

    update

    Hi all...i previously posted a thread as i was concerned i had pls. I have had further tests, an MRI and appointments with a geneticist. They have determind that i have a genetic condition and not pls or progressive ms....they have given me a likely diagnosis of HSP, they also said there is...
  4. M

    not good. im scared.

    Hi all. This is hard for me...its scary to realise that I may have pls. Im still in denial that something is wrong...i only have mild issues with walking, its not that bad. I suspected a problem but hoped it was in my head, i could not believe i would have a problem as im only 24 years...
    • mummy24
    • Thread
    • age anxiety brain cramps denial diagnosed hsp medical mummy muscles neurologist pls problem problems scared symptom symptoms vision weakness wrong young
    • Replies: 9
    • Forum: Primary lateral sclerosis
  5. Tokahfang

    HSP vs PLS: Some General Info

    Being halfway between an HSP and PLS diagnosis, I've had a lot of time to learn the nuances of the two diseases. Since anyone with a generic UMN diagnosis ends up here, this seemed a good place to put up some info. First, the similarities: HSP (Hereditary Spastic Paraplegia/Paraparesis) and PLS...
    • Tokahfang
    • Thread
    • advice atrophy baclofen bulbar camp clinical confused cure dementia diagnosis digital drugs eye fatigue finger ftd genetic hsp info information medical neurologist nurses pain paraplegia physical therapy pls pressure sores problems progression reflex support symptoms tests therapy umn unknown voice weakness wheelchairs work
    • Replies: 17
    • Forum: Primary lateral sclerosis
  6. S

    Neck pain?

    My neck has been killing me again! I'm about to take several days away from the computer to see if that helps but this has been an issue I've dealt with since I started having the other symptoms and I don't know if it's autonomic dysfunction and/or PLS/ HSP. Does anyone else have killer neck...
  7. S

    Newbie. Waiting for a diagnosis

    Hi. My first posting on this forum I'll tell you a bit about myself I have been experiencing increased balance and walking difficulties since January I had to take sick leave since may.initially they thought it was a cervical disc problem but then decided my symptoms didn't fit. They are...
    • Stifflady
    • Thread
    • ankle back balance brain clonus diagnosis emg falling genetic genetic testing hsp mri neurologist neurology newbie pls problem symptoms testing trip walker
    • Replies: 13
    • Forum: Could this be ALS?
  8. B

    Where do I Go From Here?

    Hi, I am new to the forums but have been viewing for some time since my diagnosis was underway, but now I feel completely confused after my latest neuro appointment. Grateful for any insights you may have. I have been seeing my neuro for around 2 years now and have undergone the usual battery...
    • BeckyUK
    • Thread
    • ability age back baclofen balance battery clonus confused diagnosis genetic health hsp lyme lyme disease mri pls spastic paraparesis symptoms tests treatment unknown work wrong young
    • Replies: 33
    • Forum: Primary lateral sclerosis
  9. Just J

    Help needed regarding PLS progression

    Hello everyone. I was wondering if you all would help me out by providing some general information. I am looking for data on the progression of PLS. Understanding it is different for everyone. If you could please provide a synopsis from symptoms onset to current I would really appreciate it. If...
    • Just J
    • Thread
    • als baclofen balance data diagnosed hsp information lyme lyme disease medical neurologist night onset pls power progression symptoms test treatment walker wheelchair
    • Replies: 27
    • Forum: Primary lateral sclerosis
  10. Tokahfang

    A Quiet Greeting

    Hello! I have come to this place by a circuitous route, but I hope you won't mind the intrusion. I started a mostly typical course of sporadic (no family history, didn't get genetically tested for cost's sake) HSP in 1994ish. I had hand involvement, but that is part of a few variants. Years of...
    • Tokahfang
    • Thread
    • advice back bedridden coping cost diagnosed family family history food hope hsp ice increase life manual paraplegia progression sporadic support swallowing voice weakness
    • Replies: 9
    • Forum: New members
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