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  1. W

    Twitching cramps and stiffness

    Hello everyone 3 weeks ago I started feeling twitching in my left shoulder. It wasn't strong at first but now I can most definitely feel it. Doesn't happen all the time. Comes and goes through out the day. Sometimes it will stop for like 8 hours. During this time I have been feeling stiffness...
  2. M

    A delayed introduction

    Hello All, I want to first say thank you for taking the time to read this post. I have avoided posting here for about 1 year but due to changes recently I have decided, still with some hesitation, to post. I was going to write more of my history but I do not want to take up your time any more...
  3. A

    My story

    Hi all. Here's my story. Please let me know what you think. Thanks in advance. I am 55 female. Started having finger, hand, and toe cramping at least 17 years ago. I also had body wide twitching. Was worried cuz I was due to have a kidney transplant surgery with general anesthesia and was...
  4. Kristina1

    update on me

    I haven't posted in a while so I wanted to update. One of the main reasons I haven't been on here is... I'm writing a book! Or trying to. It has nothing to do with ALS or anything autobiographical. It's a scifi/fantasy romance. I've long been an avid fantasy reader, and always had stories of...
  5. R

    Sharing the road

    My Pals started a downward spiral 30 days ago. Could no longer talk, appetite diminished, slept 14-15 hours at night and often a long nap in the afternoon. I asked twice if she wanted our granddaughters to come decorate for Christmas and never got a response. I had them cone out anyway and she...
  6. T

    Never wanted to do this.

    Hello, first I just want to say thank you for reading this and for those who are affected with “A” y’all are brave souls and I pray for y’all. I didn’t wanna post on here because I felt like i didn’t need to but I feel like I’m losing my life. I’ve recently lost my job, almost my relationship...
  7. M

    Long time without diagnosis

    Hi everybody. I am man 29. My story started a year ago. Something around 01.18 I started to feel strange feeling in upper side of my right feet. It is difficult to describe. Like sock was tight (without sock). I visited doctor, he recommended me antidepressants, (I took them until Spring...
  8. Chincoteaguer

    Started the morphine

    Started giving Sibyl morphine @ 4pm yesterday. Instructions say 0.5 ML every 4 hours but I waited until 3:30 this morning for the second dose. Also giving her lorazepam after discussing with hospice nurse. She is resting comfortably but very shallow breathing. Thru the tube the morphine...
  9. K

    Grief/ Crying/ Can't Breathe

    Sadly, my sister passed away last week, and the family is gutted. She was a bright light, and we miss her terribly. My 87 year old Mum is grieving hard. Yesterday she was crying with full abandon, and suddenly felt she couldn't breathe. I've read here before that PALS can have spasms, and...
  10. L

    Flying free soon

    My husband who has ALS/FTD will be flying free soon and going home to be with his Lord and Savior, Jesus Christ. He was diagnosed in May of last year. He has pneumonia and his lungs are completely full. It happened in a matter of hours. He’s resting comfortably now but had a rough day...
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