hours

  1. Lkaibel

    Emergency Room Today

    Today, Brian went the Emergency Room because the ALS clinic said his massive, room spinning vertigo attacks starting last night might be a stroke. Well, we spent four hours there and no stroke, no heart attack but they seem to think he has inner ear issues. He was referred to an ENT but we are...
  2. N

    Struggling

    Sometimes I even hate to do a rant like this because I feel like I'm whining. It's taken me 24 hours to get up the courage to put pen to paper, as it were. Yes, I'm struggling. The why has multiple reasons. These are on no particular order. 1) sleep. Hasn't been going well. Mostly due to the...
  3. E

    ALS presenting with paresthesia?

    Hello all, and a sincere thank you for being here and sharing your thoughts-- I am curious to hear about your experience with paresthesias (burning pain, tingling, or numbness) in ALS/MND. Have any of you had paresthesias as the first symptom of ALS or other MND? How would you describe them...
  4. S

    Behavioral changes

    My wife was diagnosed two years ago, and the progression has been quite fast. Right now she is almost completely immobile, has a PEG and a vent since a little more than a year. She used to be really smart, both in the academic and the emotional sense, had a great sense of humor, and used to be...
  5. T

    Probable MND (als) they say

    Howdy. So the neurologist said. After muscle twitching for months I was referred to an EMG specialist. After he performed his thing on me the resulting diagnosis was, as in the title "probable mnd, probable als". I'm a 43 yo male, with two little kids (2 daughters), and I have to say this is...
  6. DaChief

    On an Adventure

    My Rhine Cruise adventure got off with a bang. FLight from Orlando to JFK in New York was delayed for three hours so we finally left about 2pm. I settled back, got a beer, then relaxed as I had a few hour layover at JFK before my flight to Zurich. Fast forward to 2am sitting in Boston after...
  7. S

    Exhaustion and Frustration with Family

    I have recently been getting more tired, taking naps and when walkingtbe dogs around the block a couple of times I suddenly had to sit down in the road It is hard to explain the exhausted feeling that hits me. I think it is my stomachs muscles. I feel like my husband and kids (18, 19) don't...
  8. S

    Stubborn Dad

    Hi everyone, My 66 year old Dad was diagnosed in April but has been declining for some time. It started with him losing weight for no reason. Separately, as far as we've been told, he has back and neck pain and over the past few years his posture has decline to very hunched over. His voice is...
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