hours

that it would hurt this much. I have never experienced pain like this before. It's only 24 hours since my PALS died and there is still so much to come... the burial in 2 days. I don't know how I'm going to go through that. I wish he had asked to be cremated but he wanted a burial instead. I...

So for the past month or so I have had some small pain in my right calf. Usually when I am sitting down I get up to walk around the pain is in my right calf and it goes away once I take a few steps. I am guessing this could be a strain but I worry this is a cramp. Yesterday I was laying on my...

Today, Brian went the Emergency Room because the ALS clinic said his massive, room spinning vertigo attacks starting last night might be a stroke. Well, we spent four hours there and no stroke, no heart attack but they seem to think he has inner ear issues. He was referred to an ENT but we are...

Sometimes I even hate to do a rant like this because I feel like I'm whining. It's taken me 24 hours to get up the courage to put pen to paper, as it were. Yes, I'm struggling. The why has multiple reasons. These are on no particular order. 1) sleep. Hasn't been going well. Mostly due to the...

Hello all, and a sincere thank you for being here and sharing your thoughts-- I am curious to hear about your experience with paresthesias (burning pain, tingling, or numbness) in ALS/MND. Have any of you had paresthesias as the first symptom of ALS or other MND? How would you describe them...

My wife was diagnosed two years ago, and the progression has been quite fast. Right now she is almost completely immobile, has a PEG and a vent since a little more than a year. She used to be really smart, both in the academic and the emotional sense, had a great sense of humor, and used to be...

Howdy. So the neurologist said. After muscle twitching for months I was referred to an EMG specialist. After he performed his thing on me the resulting diagnosis was, as in the title "probable mnd, probable als". I'm a 43 yo male, with two little kids (2 daughters), and I have to say this is...

My Rhine Cruise adventure got off with a bang. FLight from Orlando to JFK in New York was delayed for three hours so we finally left about 2pm. I settled back, got a beer, then relaxed as I had a few hour layover at JFK before my flight to Zurich. Fast forward to 2am sitting in Boston after...

I have recently been getting more tired, taking naps and when walkingtbe dogs around the block a couple of times I suddenly had to sit down in the road It is hard to explain the exhausted feeling that hits me. I think it is my stomachs muscles. I feel like my husband and kids (18, 19) don't...

Hi everyone, My 66 year old Dad was diagnosed in April but has been declining for some time. It started with him losing weight for no reason. Separately, as far as we've been told, he has back and neck pain and over the past few years his posture has decline to very hunched over. His voice is...