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I first noticed foot drop in January on my right leg and ankle causing a pronounced limp. But a few times I have had spasticity in both legs that has made it very difficult to walk. So far, this stiffness has gone away after a few minutes or hours but it feels like it is happening more often...

As many of you know I banked my voice with Model Talker. I have the file that was produced installed on my ancient Samsung Galaxy S4 cell phone. I have been having difficulty using my thumbs to type of the phone's keyboard. As my voice continues to fade, I decided it was time to get serious...

Last two weeks I have been sleepy or sleeping all the time. I nap twice a day for 90 minutes. 8 hours at night. I use the ventilator 20 hours daily on Passive AVAPS. Spirometer testing last week was at 19% FVC. Fluid and food intake is good through the MIC-KEY button. No pain, just stiffness...

Hello, I am an 18 year old guy, a hypochondriac to be honest. 2 Months ago, I developed knee pain, and foot stabbing. It felt like electricity I think. I thought I had bone cancer. I was stressing out about it. It got better with movement, and I forgot about it for a week - I really dont think...

My dad keeps saying he doesnt want to wake up. He hates that he cant do anytjing but is refusing almost all interventions (peg, walker, scooter, wheelchair, etc... he does have a bipap and cough assist but only uses it about 5 hours at night instead of most of the day as per dr). We keep trying...

My mom passed away in June, less than 2 years after diagnosis. I honestly do not think it was the ALS that finally took her but I guess it could have been. She got a feeding tube 1 year earlier even tho she could still swallow, because they recommended getting it early while it wouldn't be...

Help me! I am feared, concerned. Will put my symptoms? shortly. 1- ALS has been diagnosed for my mother (in 2017, she is 70 years old), 3 years ago she was at doctor with as she said, something with wrists, and they said it might be something to surgery but the doctor said in 3 years you wont...

Now that I have started using the ventilator and a full face mask to maintain energy during the day, I have been suffering, after a couple of hours on it, from popping of ears which results in loud distracting amplification of my breathing sounds. This never happens when laying down, Any tips...

My wife’s doctor doesn’t want to place a PEG tube. Today the doctor told me I might want to get hospice involved. I’m fully wrecked crying my heart out. Here’s how things happened… My wife started showing symptoms 1/16 and was diagnosed 11/16. She lost both her legs 3/17. Things seemed to slow...

Nowadays it isn't easy to find health plans with no caps on home health coverage, but if you're covered under a federal employee HMO plan, you should check the plan documents to see if it is a "federally qualified" HMO. No limits on the frequency or duration of visits are permitted on home...